Questions & Answers

Hello
My husband has triple negative ET at the moment but still gets very fatigued and when he goes through times he has a virus/cold he becomes abnormally exhausted even more and it takes him more days to recover. I feel an FMLA would help alleviate some stress for him. In case a day off to recover on his worst days happens. Plus he’s having to take off work for blood work follow-ups at least every 3 months now if not sooner. But as we all know this doesn’t account for any specialist were… read more

Overt Myelofibrosis, grade 2 fibrosis with 30% cellularity, and splenomegaly 21cm. CALR1+, with ASXL1, and TET2 mutations. Blasts only at 2% which is good but that's an increase nonetheless. LDH 800's, RBCs <4.00, HGB 11.5. PLTS 600, slight lymphocyte elevation. nRBC's 10 with polychromatic cells, darcocytes, and ringed cells. Bone scans show "Diffuse osteosclerosis" and I don't know if that means advanced fibrosis or if that's just super common with us MF people.

Symptoms are fatigue, pain in… read more