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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Bone Marrow Biopsy
A myMPNteam Member asked a question πŸ’­

What is the experience of those who have had them? Were you given sedation of any type? What type of experience did the person doing the proceedure.? Would you let your local cancer doctor or PA do it or would you go to a Cancer Center like Moffitt. ?

posted March 8
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A myMPNteam Member

One little tip. My hip area was pretty sore and achy for 2 or 3 days, and I found that an ice pack two or three times a day for 15 minutes helped.

posted March 11
Does Anyone Get Collarbone Pain?
A myMPNteam Member asked a question πŸ’­
posted March 5
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A myMPNteam Member

I’ve never had collarbone pain but everywhere else.

posted March 14
Can People Who Take Aspirin Also Take A Tylenol For Pain? Or A Half Of A Tylenol 500?
A myMPNteam Member asked a question πŸ’­

I have PV high platelets and high HCT at the moment and I’m in a lot of pain and I need to take something. My doctor did say it was all right but I just wondered if it’s OK to take with aspirin or if anyone else does. Thank you.

posted March 4
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How Do You Deal With The Never-ending Dishonest Insurance Companies.
A myMPNteam Member asked a question πŸ’­
posted March 4
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A myMPNteam Member

Not sure but will have to call them soon. Insurance agreed to pay all but $1700 a month for Besremi. Drug manufacturer agreed to cover the difference for one year. Now the insurance company is… read more

posted 5 days ago
Is Working Out 5 Days A Week Bad For Me Having PV?
A myMPNteam Member asked a question πŸ’­

for the last 2 years I have been working out at the gym 90 minutes for 5 days a week to get fit and now I am. after being diagnosed with PV last month, I have some concerns wheather working out for 5 days a week can be bad for me or not.
I am 42 and feel very energetic and want to be a fitness coach so I am really looking for a science based recommendation about this.
Thank you

posted March 3
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A myMPNteam Member

Thank you so much Peter for your amazing recommendations. wish you another 100 energetic and healthy years. The problem is that doctors have different opinions on this topic and we really need an… read more

posted March 7
So I'm Triple Negative And Having A Bone Marrow Biopsy On 16th March. What Can I Expect Please?
A myMPNteam Member asked a question πŸ’­
posted March 2
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A myMPNteam Member

What does it mean you are triple negative

posted March 3
Has Anyone Lost Hair From The Myeloprolifeative, Or The Meds Hydroxyurea. Thanks For Any Info About It. Judy
A myMPNteam Member asked a question πŸ’­
posted March 1
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A myMPNteam Member

HU 5 days a week. Some hair thinning.

posted 11 hours ago
My MPN Is Still Listed As Unclassified. My Blood Has Remained Pretty Stable Except For Really Low Hemoglobin And Hematocrit. Any One Else ?
A myMPNteam Member asked a question πŸ’­
posted February 28
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A myMPNteam Member

Yes

posted February 28
Has Anyone Had Hyperglycemia As A Result Of Besremi?
A myMPNteam Member asked a question πŸ’­

I was prescribed Besremi by an MPN specialist and was to be monitored by local Hematologist/Oncologist. Had blood work after the second dose and glucose is up to 160 normal for me is/was 94. Not really sure what to do next since the local doctor has not said anything.

posted February 27
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A myMPNteam Member

I had blood glucose checked again today as part of a routine physical but I have not gotten the numbers back yet. They did check A1C and it was normal.

posted February 28
ET And Interferon
A myMPNteam Member asked a question πŸ’­

Anyone that has been on hydroxyures that had to switch to interferon have any bad side effects?
I have been told I may have to switch for my ET treatment and am wondering what side effects should I expect?
Thanks

posted February 26
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