I am 5'1 and weigh 265 lbs so I am trying to lose weight and was just diagnosed with PV. I lost 40 lbs before being diagnosed but now am wondering if I need to change my diet and supplements.
Losing weight I think is always a struggle and I can only say what works for me. I am not a health care professional. I stay on a low-carb Mediterranean diet because I have diabetes and I… read more
I was diagnosed a few years ago by a wonderful physician who spent 5+ years trying to figure out what was wrong (ET-CALR Mutation). He transferred to another state and program a week after I finally got diagnosed. For the past two years I've been trying to connect with another doctor who will help me with my diagnosis.
I went to a second opinion appointment with a MPN specialist this month and was dismissed and told I was misinformed about my diagnosis. I don't believe this to be true as I had… read more
Doctors are like PC technicians line up as many as you want and they will always say the other ones did it wrong