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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Superficial Phlebitis

Superficial Phlebitis

I was wondering if any of you experience superficial phlebitis? I was diagnosed with PV in June 2020. However, one of my first clues something was wrong is that I had a couple of bouts of phlebitis in my feet a year before diagnosed. Also, some micro-clots in the last joint of a couple of fingers. The doctors didn’t think anything was wrong. I have continued to have phlebitis in feet and ankles periodically. The doctors don’t seemed worried as long as not a DVT, but they are painful. Finally, I… read more

A myMPNteam Member said:

I do periodically. I have a painful lump in my left forearm at the moment. If I have one when in to see the MD I’ll complain, but nothing has come of those thus far.

posted about 2 months ago

Issues With Zyrtec - Increase In White Cell Count - Vein Issues

Issues With Zyrtec - Increase In White Cell Count - Vein Issues

I am recently having a lot of side effects from Zyrtec, nausea, headache and extreme tiredness. I though for some time I was developing new symptoms from the PV and Hydroxyurea, and recently realized that if I don't take any Zyrtec I don't have those issues
My HCT a week ago was the highest its ever been at 49.5 , surprise to me as I didn't have the usual warning signs. I didn't see the Dr. just a treatment. They had trouble with my veins this time, and somewhat the last time in March.… read more

A myMPNteam Member said:

I didn’t tolerate Zyrtec well. Made me r way too dizzy. Try other antihistamines. The only one I could tolerate while taking HU was Claritin 10 extended relief, and Benadryl <— and b. will make you… read more

posted about 1 month ago

Does Itching Subside With Phlebotomy?

Does Itching Subside With Phlebotomy?

My MPN specialist started me on phlebotomy as treatment for my PV. He says that once we get my hematocrit down to around 42 and keep it there, the itching will get better. Does anyone have any experience with this?

A myMPNteam Member said:

Toggling? I’ve read a little about Beta Alanine. Was curious about it.

posted about 1 month ago

I Got My Blood Work Back Recently And Saw That My Sodium Level Is Low For The First Time. Has Anyone Else Experienced This?

I Got My Blood Work Back Recently And Saw That My Sodium Level Is Low For The First Time. Has Anyone Else Experienced This?

A myMPNteam Member said:

That is interesting to hear. I did drink a LOT of water during my travels because of the heat in Israel. I'll see what my next sodium level is in a couple weeks at my next blood test now that I'm home… read more

posted about 2 months ago

My RDW And RBC Counts Above Normal

My RDW And RBC Counts Above Normal

Hello all you fine people
I am 58 years old and was diagnosed with ET with a JAK2 mutation. I believe the chemo from my breast cancer treatment caused this
Once my platelets went above 1,000,000 was put on Hydrea. YUK! It has been about three years and now my RBC and RDW have gone above normal, slowly progressing over time. I have a message into my oncologist but wanted if anyone else has had this and what was the diagnosis. My iron SAT is low but it says taking iron raises RBC. HCT is also… read more

A myMPNteam Member said:

Hi there. I was diagnosed back in 2005 with ET and took Agrilyn and Hydroxyurea. In 2020 I was admitted to hospital bcuz my immune system went down to zero. ET progressed to Myleofibrosis, got back on… read more

posted about 1 month ago
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