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Is There A Difference Between Primary Mf And Secondary Mf Like Mine Coming From Pv In All Fibrose Is Forming In The Bone Marrow
Does Anyone Have Side Effects With Hydroxy Urea
I certainly agree...
Has Anyone Here Received Any Guidance And/or Used Both Omega 3 And Aspirin When They Have High Platelets?
I have been taking Omega 3 for my cholesterol which it had a positive impact. However, I'm recently diagnosed and suspect that for my high platelets I will be told to go on baby aspirin (pending an appointment).
I have been on Omega 3’s for years, began a baby aspirin about 7 years ago when taken off my blood thinner. My hematologist is aware of all supplements I take and has never advised me to discontinue… read more
This One Is For The Ladies: How Does ET Affect Your Period?
I have Essential Thrombocythemia, Arthritis and Fibromyalgia.
I spoke with my MPN Dr about this recently when he asked about overall symptoms. With the ratio of women to men being diagnosed with ET apparently at 2:1 and also at relatively younger ages now… read more
In 2018 I Was Diagnosed With A Jak2 Mutation - Now It Is Not There - Any Thoughts On What Happened To It?
They say exposure to toxins from 20 or more years ago or possibly just age. Way more prevalent to get diagnosed after 60.
Do You Follow A Specific Diet To Help With MPN?
A modified Mediterranean diet
Does Anyone Have Suggestions For Good Supplements To Take For ET?
I have Essential Thrombocythemia, Arthritis and Fibromyalgia.
In addition to my hematologist, I see a chiropractor/homeopath/holistic health care practitioner, and wish I had found him before my blood clots and ET diagnosis in 2001. He is in his late 80’s… read more
Does Anyone With ET / JAK 2 + Take N-acetyl Cysteine?
May it be helpful to your condition!
Does Anyone Know If There's A Link Between HLA B-27 And JAK2? I've Tested Positive For Both.
I have ET, arthritis and fibromyalgia.
Thanks a lot! This is very interesting.
I Have A Jak2/ET Diagnosis From My Bloodwork Done By My Oncologist Is There Any Info To Be Gained By Bone Marrow Biopsy? BMB Advice?
Blood platelets are not real high (in the 500’s) just take low dose aspirin but blood platelets went up by 50 last lab Everything else okay.
Diagnosis in May of 2024, but had high platelets since 2019.
GP just sent me to oncologist in May of this year
Thank you for any info on Bone marrow Biopsy!
Ok cancel that😀
