I was wondering if any of you experience superficial phlebitis? I was diagnosed with PV in June 2020. However, one of my first clues something was wrong is that I had a couple of bouts of phlebitis in my feet a year before diagnosed. Also, some micro-clots in the last joint of a couple of fingers. The doctors didn’t think anything was wrong. I have continued to have phlebitis in feet and ankles periodically. The doctors don’t seemed worried as long as not a DVT, but they are painful. Finally, I… read more
I am recently having a lot of side effects from Zyrtec, nausea, headache and extreme tiredness. I though for some time I was developing new symptoms from the PV and Hydroxyurea, and recently realized that if I don't take any Zyrtec I don't have those issues
My HCT a week ago was the highest its ever been at 49.5 , surprise to me as I didn't have the usual warning signs. I didn't see the Dr. just a treatment. They had trouble with my veins this time, and somewhat the last time in March.… read more
My MPN specialist started me on phlebotomy as treatment for my PV. He says that once we get my hematocrit down to around 42 and keep it there, the itching will get better. Does anyone have any experience with this?
Hello all you fine people
I am 58 years old and was diagnosed with ET with a JAK2 mutation. I believe the chemo from my breast cancer treatment caused this
Once my platelets went above 1,000,000 was put on Hydrea. YUK! It has been about three years and now my RBC and RDW have gone above normal, slowly progressing over time. I have a message into my oncologist but wanted if anyone else has had this and what was the diagnosis. My iron SAT is low but it says taking iron raises RBC. HCT is also… read more
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