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Do People With Epilepsy Swear, Extensively When Having A Seizure, Sometimes Completely Out Of Character With Their Normal Self?
Iron & Iron Saturation Question Regarding PV Patients
I was finally diagnosed with PV in 2016, and yes...my Hem & Hem levels continue to climb when I have my blood draws every 3 months (either by my PCP or my Onco/Hema). Sometimes my RBC's will be above normal, and sometimes just higher. The past two years my Iron and Iron Saturation levels have continued to climb far above the normal range. I have all of my blood drawn at the same location that's part of my healthcare group of specialists and hospitals. Meaning that I can track all of my… read more
Anyone Else Who Struggles With Onycholysis?
Recently diagnosed with ET, but also suffering from Fibromyalgia and Arthritis.
Is It Normal To Have Intense Body Itching With Polycythemia Vera? I've Had Polycythemia Vera For 8 Years Without A Problem Until Now.
Hi Lauraspravka 😄
Hi, Have ET And Jak2 Going On Ruxolitinib, Is Anyone Taking This, Like To Know How They Are Feeling And What Side Effects It May Be Causing,
Many tks, Antoinette
Hi Kathy, tks so much for your reply, really helpful, keep well , Antoinette
My Son Was Diagnosed With ET Yesterday. My Husband Has PV. Anyone Else Have A Child Along With Yourself With Blood Cancer.
Dr told our son that it was a blood disease and not cancer. Anyone else have this experience?
Hello, Cluebbers. When I was first diagnosed with PV, I was told it was a blood I discovered it myself when I noticed I had small abnormal red cells -blast on my lab tests. I'm so sorry your son has… read more
High Hemoglobin Levels (around 17) And Elevated Hematocrit (above 53) Along With A Consistently High RBC Count (6.2 And Above)
Hi everyone, I've been experiencing high hemoglobin levels (around 17) and elevated hematocrit (above 53) along with a consistently high RBC count (6.2 and above) for the past 10 years. Although my tests for polycythemia vera and beta thalassemia minor came back negative, I was diagnosed with iron deficiency. Despite this, my body continues to produce RBCs, and I'm on iron supplements
Does anyone have insights or suggestions on what type of condition I might be facing, or have you experienced… read more
Yes they have recommended me to for phlebotomy but after each session i feel very fatigue and mchc MCV and rdw cv counts usually get very low. And yes the have performed bone marrow aspiration and… read more
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
I eat the treats that I love so much and pay the price later. I am a bad person!
What Does A Negative BCR-ABL1 Mean?
Does The myMPNteam Have Any Articles Related To The Effects Of Covid And Flu Vaccines On This Disease?
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