Answer Summary

Members with essential thrombocythemia and polycythemia vera connected over the shared experience of deep, aching bone pain in their legs and... Read more

Members with essential thrombocythemia and polycythemia vera connected over the shared experience of deep, aching bone pain in their legs and arms, often described as throbbing and different from typical muscle cramps. Several members found relief through staying well-hydrated with at least eight glasses of water daily, taking Tylenol Arthritis for pain management, wearing compression stockings, and trying over-the-counter Claritin, which one member's doctor confirmed may help with cytokine-related pain. A recurring theme was the frustration of doctors not fully understanding the cause, though many believe the pain stems from blood flow issues in their extremities, with some noting that lying down or chemotherapy provided temporary relief.