Connect with others who understand.

sign up log in
Resources
About myMPNteam

Connect with others who understand.

sign up log in
Resources
About myMPNteam
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Ringing In Their Ears Intermittently With PV?

Does Anyone Have Ringing In Their Ears Intermittently With PV?

Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?

posted January 15, 2021
A myMPNteam Member

Hello, I haven't had any digestive problems. I take just Hydroxyurea 500mg once a day. I've was just diagnosed in May 2020. I had a friend with PV for a lot of years & her spleen eventually enlarged & it interfered how much she could eat & her stomach. I registered for one of the on-line webinars & asked the question about ringing in the ears, & the person doing the webinar said it's from small blood clots in the inner ear--I assume he knew what was talking about.

posted June 15, 2021
A myMPNteam Member

I also have PV but lately had some balence issues when I get up in the morning. I also have a slight headache but concerned if its someting with my ears. Its new so interesting you experienced this.

posted March 8, 2021
A myMPNteam Member

I was diagnosed with PV in 2015. I have had ringing in my left ear for years. I’ve mentioned it to my doctor; and he didn’t acknowledge that it could be related to the PV. After reading all the comments, I’m sure it is! I’ve learned to live with it. Some days it is louder than others. I’ve learned that if I sit quietly & calmly, it subsides. I’ve also considered going to a hearing specialist for help. Somehow it never got to the top of my priority list. I guess there is only so much one can deal with at a time. Please keep me posted. Thanks & take care of yourself.

posted January 18, 2021
A myMPNteam Member

Since my diagnosis, I’ve always noticed constant ringing in my ears. I try to focus on other things and just tune it out. Sometimes that helps.

posted January 16, 2021
A myMPNteam Member

I have noticed if I say away from white sugar it is not as bad.

posted November 5

Related content

View all
What Symptom Do You Have That You Didn't Expect?
A myMPNteam Member asked a question 💭
Some Feedback Please...
A myMPNteam Member asked a question 💭
When You Went To An MPN Specialist For A Second Opinion,what Was The One Important Question You Wanted To Make Sure You Asked?
A myMPNteam Member asked a question 💭
Already a Member? Log in