Does Anyone Have Ringing In Their Ears Intermittently With PV? | myMPNteam

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Does Anyone Have Ringing In Their Ears Intermittently With PV?

A myMPNteam Member

Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?

posted January 15, 2021
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61 replies
A myMPNteam Member

I have tinnitus big time, more now on the Jakafi

posted 4 days ago
A myMPNteam Member

Constant for me…

posted August 24
A myMPNteam Member

Hi, yes, i have PV and I get a high pitched ringing in my ears maybe a few times a week. It lasts about 30 seconds and dosnt seem to be any particular activities that cause it. I take 75mg aspirin seem venesections every few months.

posted August 24
A myMPNteam Member

Yes, I do have the ringing in my ears. I think I’ve had it for maybe 4-5 years. Was diagnosed 2010 with ET after having BMB. But after going to specialist he called it PV. What I already knew in my own mind. I tried some pills I read about online, they didn’t seem to help. I just deal with it. Some days really hard.

posted August 23
A myMPNteam Member

Mine never sounds like that but at some times is much worse than other times and different pitches!

posted August 23
A myMPNteam Member

Diagnosed with ET not PV but yes, ringing in ears. Seems strange but sometimes it sounds more like the noise that a window fan makes!

posted August 23 (edited)
A myMPNteam Member

Yes, I have had and do have ringing in my ears; however, the ringing predates the diagnosis of PV. I try to ignore as much as possible.

posted April 9
A myMPNteam Member

Well I have ET and totally struggling with ringing in ears and fullness in my head - totally debilitating for the past month! My doc sent me to ER and was able to rule out any bleed or stroke so now I am starting Hydroxyurea in hopes it will help a bit 🤷🏻‍♀️. I just read an article in this site about platelets and relation with ears ringing. Taking it to my doc next week so he has it for future learning 😳

posted March 30
A myMPNteam Member

Yes constantly. And sometimes I there’s like a rushing behind my ears.

posted February 27
A myMPNteam Member

I have always has tinninitus since I was 8 years old & now it is constant & so loud, I always have to have TV on or music.

posted February 22

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