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Does Anyone Have Ringing In Their Ears Intermittently With PV?

Does Anyone Have Ringing In Their Ears Intermittently With PV?

Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?

A myMPNteam Member said:

Hello, I haven't had any digestive problems. I take just Hydroxyurea 500mg once a day. I've was just diagnosed in May 2020. I had a friend with PV for a lot of years & her spleen eventually enlarged & it interfered how much she could eat & her stomach. I registered for one of the on-line webinars & asked the question about ringing in the ears, & the person doing the webinar said it's from small blood clots in the inner ear--I assume he knew what was talking about.

posted 4 months ago
A myMPNteam Member said:

I also have PV but lately had some balence issues when I get up in the morning. I also have a slight headache but concerned if its someting with my ears. Its new so interesting you experienced this.

posted 8 months ago
A myMPNteam Member said:

I was diagnosed with PV in 2015. I have had ringing in my left ear for years. I’ve mentioned it to my doctor; and he didn’t acknowledge that it could be related to the PV. After reading all the comments, I’m sure it is! I’ve learned to live with it. Some days it is louder than others. I’ve learned that if I sit quietly & calmly, it subsides. I’ve also considered going to a hearing specialist for help. Somehow it never got to the top of my priority list. I guess there is only so much one can deal with at a time. Please keep me posted. Thanks & take care of yourself.

posted 9 months ago
A myMPNteam Member said:

Since my diagnosis, I’ve always noticed constant ringing in my ears. I try to focus on other things and just tune it out. Sometimes that helps.

posted 9 months ago
A myMPNteam Member said:

I do not have ET but get the ringing in my ears when my blood numbers are off. That is one of the signs that tells me that I need to get my labs done. Usually there is something off about my labs. You might want to check into that.

posted 7 months ago
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