I have tinnitus big time, more now on the Jakafi

Constant for me…

Hi, yes, i have PV and I get a high pitched ringing in my ears maybe a few times a week. It lasts about 30 seconds and dosnt seem to be any particular activities that cause it. I take 75mg aspirin seem venesections every few months.

Yes, I do have the ringing in my ears. I think I’ve had it for maybe 4-5 years. Was diagnosed 2010 with ET after having BMB. But after going to specialist he called it PV. What I already knew in my own mind. I tried some pills I read about online, they didn’t seem to help. I just deal with it. Some days really hard.

Mine never sounds like that but at some times is much worse than other times and different pitches!

Diagnosed with ET not PV but yes, ringing in ears. Seems strange but sometimes it sounds more like the noise that a window fan makes!

Yes, I have had and do have ringing in my ears; however, the ringing predates the diagnosis of PV. I try to ignore as much as possible.

Well I have ET and totally struggling with ringing in ears and fullness in my head - totally debilitating for the past month! My doc sent me to ER and was able to rule out any bleed or stroke so now I am starting Hydroxyurea in hopes it will help a bit 🤷🏻‍♀️. I just read an article in this site about platelets and relation with ears ringing. Taking it to my doc next week so he has it for future learning 😳

Yes constantly. And sometimes I there’s like a rushing behind my ears.

I have always has tinninitus since I was 8 years old & now it is constant & so loud, I always have to have TV on or music.