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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can Anyone Share How They Responded To Interferon Or Other Treatments To Lower Their Platelets?

A myMPNteam Member asked a question 💭
Chelmsford, MA

I have ET, Cal Axion 9 Mutation (Calr). I have been on HU for over a year, my platelets have reached 1.5 million. (They have been at 1 million for over a year.) I am wondering about side effects. Thanks in advance!

January 19, 2021
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A myMPNteam Member

I take Peginterferon as of two months ago. My platelets came down steadily each week and as of this week was 415 which is now in the normal range. I had headaches for about a month but after that I had no side affects at all and much more energy.

May 19, 2021
A myMPNteam Member

I’ve been on Pegasys since August 2022 and my current platelet count is 341. With Hydrea it never went below 650!

August 20, 2023
A myMPNteam Member

I’ve been on Pegasys since August 2022 and my platelet count is at 438 after being at 700 with Hydrea.

May 17, 2023
A myMPNteam Member

I take Hydroxarea with no side effects and no side effects for me for three years.

April 23, 2023
A myMPNteam Member

My friend had ET at 1.3 mill and after 6 months on Pegasus Interferon, numbers were normal. No side-effects either.

August 7, 2023

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