Can Anyone Share How They Responded To Interferon Or Other Treatments To Lower Their Platelets? | myMPNteam

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Can Anyone Share How They Responded To Interferon Or Other Treatments To Lower Their Platelets?
A myMPNteam Member asked a question 💭

I have ET, Cal Axion 9 Mutation (Calr). I have been on HU for over a year, my platelets have reached 1.5 million. (They have been at 1 million for over a year.) I am wondering about side effects. Thanks in advance!

posted January 19, 2021
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A myMPNteam Member

I take Peginterferon as of two months ago. My platelets came down steadily each week and as of this week was 415 which is now in the normal range. I had headaches for about a month but after that I had no side affects at all and much more energy.

posted May 19, 2021
A myMPNteam Member

I’ve been on Pegasys since August 2022 and my current platelet count is 341. With Hydrea it never went below 650!

posted August 20, 2023
A myMPNteam Member

I’ve been on Pegasys since August 2022 and my platelet count is at 438 after being at 700 with Hydrea.

posted May 17, 2023
A myMPNteam Member

I take Hydroxarea with no side effects and no side effects for me for three years.

posted April 23, 2023
A myMPNteam Member

My friend had ET at 1.3 mill and after 6 months on Pegasus Interferon, numbers were normal. No side-effects either.

posted August 7, 2023

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