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Can Anyone Share How They Responded To Interferon Or Other Treatments To Lower Their Platelets?
I have ET, Cal Axion 9 Mutation (Calr). I have been on HU for over a year, my platelets have reached 1.5 million. (They have been at 1 million for over a year.) I am wondering about side effects. Thanks in advance!
I take Peginterferon as of two months ago. My platelets came down steadily each week and as of this week was 415 which is now in the normal range. I had headaches for about a month but after that I had no side affects at all and much more energy.
I’ve been on Pegasys since August 2022 and my current platelet count is 341. With Hydrea it never went below 650!
I’ve been on Pegasys since August 2022 and my platelet count is at 438 after being at 700 with Hydrea.
I take Hydroxarea with no side effects and no side effects for me for three years.
My friend had ET at 1.3 mill and after 6 months on Pegasus Interferon, numbers were normal. No side-effects either.
When Do You Know It Is Time To Up Treatment From Daily Asprin To Hydrea Or Other Treatment Options?
Does Anyone Take Supplements That Help Lower Platelets? Thanks
Is Anyone Currently On The Medication Combo Of Interferon (Pegasys) And Ruxolitinib (Jakafi)?
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