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Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?

Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?

Is a baseline bone marrow biopsy standard in the diagnosing of a MPN or for monitoring it?

posted July 3, 2021
A myMPNteam Member

Just had my 3rd one done last week. In combination with a full blood panel, it's the only way my MPN specialist can evaluate the the progression (or not) of my ET. It's not a pleasant procedure, but one that must be done, unfortunately.

posted August 31, 2021
A myMPNteam Member

I have not had one but was diagnosed with ET after they found the CALR mutation. I believe if you are triple negative now or prior to CALR and JAK2 mutation discoveries biopsies were done. Now they are done to distinguish MF from ET and PV. Also done if they are concerned about progression from ET or PV to MF. If there is a big change, I will get one. So far I have avoided it but my doctors will do it, if my symptoms warrant it. Not necessary other than baseline unless there is a reason. I keep asking why I didn't get a baseline. I think I should have had it 3 years ago at diagnosis.

posted November 21, 2021
A myMPNteam Member

I had a biopsy done to confirm diagnosis. Not had one since. Completely painless but was given some drug where I was fully awake and aware but could not feel it. Haven't had another one since the first about 16 months ago.

posted April 19
A myMPNteam Member

I’ve had 2. One was to get a baseline. The second showed bone marrow scarring. The first I had sedation. The second just a local to the skin. Very quick procedure. I personally prefer sedation as I’m a wimp for needles.

posted August 24, 2021
A myMPNteam Member

My doctor asked if i would do a biopsy so we would have a baseline. He said he always encourages people to do it in the hospital, guided by ultrasound, and using the good drugs available. I was afraid to have it. Had heard terrible stories about pain. But seriously, it was a piece of cake. No pain during the procedure, and a little backache afterwards that Tylenol took care of.

posted August 22, 2021

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