Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done? | myMPNteam

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Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?
A myMPNteam Member asked a question 💭

Is a baseline bone marrow biopsy standard in the diagnosing of a MPN or for monitoring it?

posted July 3, 2021
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A myMPNteam Member

Just had my 3rd one done last week. In combination with a full blood panel, it's the only way my MPN specialist can evaluate the the progression (or not) of my ET. It's not a pleasant procedure, but one that must be done, unfortunately.

posted August 31, 2021
A myMPNteam Member

I had a bone marrow biopsy done in February. My first one. Im an RN and I have assisted Dr’s in this procedure and so insisted that I have it done with IV sedation! The BM showed +ET and also that I do not have any fibrosis

posted May 18
A myMPNteam Member

I declined the BMB my MD said he would not have it a at my age 89years

posted August 23
A myMPNteam Member

Concerns me that you never met your first hematologist. Are any of these specialists in MPN? Do you live a distance from care providers? I’ve had 2 BMB’s and did not have any issues. The first diagnosed ET and 10 years later, a second one found the JAK2 mutation and because my platelets had been under control, the new discovery was that now i was very anemic, needed blood transfusions and now get Reticrit every other week. My hemacrit is still a bit low and the red blood cells i produce are abnormal. When i had the second BMB, I was placed on Jakafi. I wish you could get better information about your condition. Good luck

posted July 27
A myMPNteam Member

I had a bmb the week of the first of September, 2023. It showed right away I have a Post PV myelofibrosis. The medical team would not have found it without the bmb.

posted November 12

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