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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Ingleside, Ontario Canada

Good morning, I was diagnosed with ET JAK2 + in November 2021. I am 62 years old. I was started on 1000 mg daily of Hydrea and 81 mg asprin. For the past month I have been extremely tired. I have a telephone appointment with my hematologist in early May. Bloodwork work has not really changed. I have it done monthly now. My platelets are normal now. RBC’s and WBC’s are a little low but this is not new. I am also assuming this is med related.! Any input or this a normal side affect. Just wander if… read more

April 22, 2022
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Answer Summary

Members openly discussed the overwhelming fatigue that often accompanies ET and MF, with many describing how tiredness has forced them to cut... Read more

Members openly discussed the overwhelming fatigue that often accompanies ET and MF, with many describing how tiredness has forced them to cut back on activities, adjust work schedules, or rest immediately after coming home. Several members shared practical strategies that have helped, including splitting Hydrea doses between morning and evening, taking short walks to build strength, using Gatorade or Powerade for electrolytes, and checking hemoglobin levels since low red blood cells from Hydrea can worsen exhaustion. A recurring theme was the importance of bringing up every symptom with your hematologist, even when fatigue feels dismissed, and advocating for dosage adjustments or alternative approaches when side effects become unmanageable.

A myMPNteam Member

Anything and everything you feel should be discussed with your oncologist. That’s the only way they can help you

May 8, 2022
A myMPNteam Member

If you have more fatigue than usual, it seems to be your numbers may be low. In my experience, that has been the issue. Also if you drink Gatorade or Powerade they have electrolytes in them and they seem to pick me up on slow days.
Tracy

April 25, 2022
A myMPNteam Member

How are you taking your hydr.
I take mine one in the morning and one at night. I am not as tired as I was in the beginning. Yes tell your Dr. Always you feel it may be how your taking your medication or something else.

April 22, 2022
A myMPNteam Member

I boy take it every third night as it destroys my digestive system. Try taking short walks which can build up strength 💕

April 23, 2022
A myMPNteam Member

Tiredness is part of the disease but also can be a side effect of medication. Look up side affects for your medication.

April 22, 2022

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