Is anyone on Pacritinib also known as Vonjo? For Myleofibrosis?π
My new Dr is a specialist too and she
Wants me to take Besremi. Itβs an injection and
Very expensive.!! Waiting to see if
I can get
More financial hep. Donβt know what
To do
Otherwise
JennKaz - today is June 10, 2023, are you still on Pacritinib? How are you doing? I want to suggest it to my doctor. I am in SA, TX
Yes I am on Pacritinib also known as Vonjo for Myleofibrosis. Iβve been on it since February and Iβm doing so well. Most of my blood counts are now normal and my spleen is less than half its size! I was on Jakafi for 3 months and it was not good for me it actually advanced my PV to Myleofibrosis. My Doctor is a specialist for Myleofibrosis and is located at the Hillman Cancer Center in Pittsburgh,PA. He is a great doctor.
Is that what you taking jennine?