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About myMPNteam
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted November 23
A myMPNteam Member

I was quite sick starting in 2020 for over two years. I had Lyme disease plus ET but wasn't aware of what was wrong right away. I had the perfect storm going on inside me and I was scared! During this time, I really struggled to walk, I had so much pressure in my head. So I relied on people. Lots of people for rides to appointments. I gave gift cards for gas, hugs. Lots of hugs, yes during a pandemic. I needed the reassurance I would be okay. I cried on their shoulders. I told them how much their friendship meant to me. I was vocal and grateful. Today I am doing really well. No more Lyme thanks to hyperthermia treatments in Aug 2020 and in early 2022 I was finally diagnosed with ET, and I am thrilled to say now ET micro vascular issues are under control! My friends and family know they were a great support in my healing journey because they truly were the ones that were there when I needed them most. You really need the support of a village, not only your spouse - they are struggling too with worry for you - to get through the hard times.

posted November 23
A myMPNteam Member

My husband has read so many articles on PM that he could write a book. I am so thankful everyday for him. His family is also a big support as we have always been close. I thank them all often and hugs are my big thing anyway so it is not hard to get and give hugs. I express my gratitude in public whenever appropriate. My big concern is that I cannot think of words. John thinks I get confused, but I think it’s him. Ha!! This week has been very rough as my only sibling (Patricia) died suddenly Saturday the 26th. She was not healthy but still this was a shock. My husband and I are having to make all the arrangements and clean her apt out by end of December. She was almost totally blind, I took her to her many doc appt. Without my husband and his family, I would be lost. So hugs , kisses, and public acknowledgement abound. I wish that everyone could have the kind of in-laws, and husband that I have. I am not getting the sleep I should get these last few days. Wake up and think of Patricia and cannot go back to sleep. I hope 3:30 does not become the norm. God Bless you all.

posted 5 days ago
A myMPNteam Member

I also take Alluperinol for my gout. I was told Gout is one of the side effects of MPN. stay strong.

posted 6 days ago
A myMPNteam Member

I struggled to walk for a good part of 2022, kept getting swollen feet. Was prescribed steroids to counter the inflammation twice recently. Also taking a low dose of allipurinol, now. Figured out I have to walk and stay well hydrated, otherwise, I will get swollen feet. I think PV leads to gout.

posted November 27
A myMPNteam Member

It takes a village your very fortunate to have such a support group

posted November 24

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