I started Jakafi last October (2022) . It’s been good so far. No side effects and my numbers are in range, HCT is 39 . No phlebotomy since May (2022) . Feel like my old self.

I took 10's twice daily. For the first several months there were no problems except weight gain due to water retention which wasn't fun. But then after they upped my dose to 15mg, I started having breathing issues. My Dr switched me around Nov or Dec.

My MPN specialist told me Jakafi was for PV not ET. I was diagnosed with ET by my hemo/onoc with ET. My MPN specialist said he thinks it PV so I started taking Jakafi this week, having some headaches and wondering if Jakafi is causing them? My hematocrit is really high plus other bloodwork.

I also wouldlike to know what a BMP is.

i started with 10 mg twice, my blood counts went down and continued. Then went to 10 mg a day, blood counts still went down, now at 5 Mg a day and my counts are normal but haven't had a test in a few weeks. No phlebotomies since I started. No Itching the first couple of months and now almost intolerable as long as I stay out of the shower and watch what I eat. My Dr are recommending a BMB at this point. White count has shot up.