Answer Summary

Members shared their varied experiences with treatments for lowering platelets in ET, with many finding success through Hydroxyurea at... Read more

Members shared their varied experiences with treatments for lowering platelets in ET, with many finding success through Hydroxyurea at different doses, though some needed to switch medications when it stopped working or caused side effects like mouth sores and neuropathy. Several members described positive outcomes with Pegasys interferon, reporting platelet counts dropping from the 700s or higher into normal ranges within weeks to months, with initial side effects like headaches, anxiety, and fatigue often subsiding after the first few injections. A recurring theme was the importance of working closely with specialists to find the right medication and dosage, staying patient through initial side effects, and feeling hopeful as members celebrated dropping platelet counts and improved quality of life after years of high numbers.