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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Bristol, VA

I am being monitored for MPN and CML. My bone marrow biopsy showed some scar tissue in my bone marrow. I know exercise is important, but I want to know if there are any exercises, types of exercises, or physical activity I should avoid?

March 13, 2023
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Answer Summary

Members enthusiastically encouraged someone newly diagnosed with MPN to embrace exercise, sharing that it helps combat fatigue, improves... Read more

Members enthusiastically encouraged someone newly diagnosed with MPN to embrace exercise, sharing that it helps combat fatigue, improves circulation, prevents blood clots, and boosts mood. Several members described their own routines, including swimming, walking, yoga, bodybuilding, hiking, and water activities, with many noting to start small and avoid high-impact or contact sports. A recurring theme was the transformative power of movement, with one member sharing an inspiring story of losing 200 pounds and achieving recovery while managing PV and ET, reinforcing that exercise is not just safe but essential for thriving with an MPN diagnosis.

A myMPNteam Member

Exercise will help with many things regarding your health - but the most common symptom with an MPN is fatigue - and strangely enough - exercise will help with fatigue. I like to ski and was concerned if I fell, I might hurt my spleen. My doctors said not to worry about even that. People with MPN's run marathons. My suggestion if you don't exercise much is to start VERY small - walking is great exercise - and even 20-30 minutes a day is very helpful. Start with even a 10 minute walk and it will make a difference in your life. Go outside. Walk with a friend. Try yoga or gentle stretching. This will help you with flexibility, stiff joints and most importantly for MPN's - blood circulation. Exercise will prevent blood clots. It will also help you with brain fog. Movement is probably MORE important for people with MPN's than the general population. Start small, figure out what you enjoy doing, and have fun with it! Just do it!😊

July 19, 2023
A myMPNteam Member

I'm JAK2+, PV & ET ovelap platelets hover around 900. I'm 51 years of age.
I workout 5 days a week and hike 5 miles 2-3 days a week and I feel awesome.
4 years ago I was drunk, drugged and stoned bed ridden and I've since been diagnosed, am in recovery from drugs and alcohol and have lost around 200 lbs. You got this.
Beezy

March 19, 2023
A myMPNteam Member

I do think exercise is important I walk do a few 5 minute heal tapping and I marching on my mini trampoline each day and sit and be fit once or twice a week. I have Alexa play music and that gets me through my household chores.I am a senior and just have to keep moving.I still get plenty of time in my chair!😅

August 23, 2023
A myMPNteam Member

Exercise is essential for physical and emotional well being. Having a trainer to hold you accountable helps. I won't let this crazy disease be an excuse to stop working out.

December 16, 2023
A myMPNteam Member

Also avoid running as it’s bad for your knees and bones!

August 17, 2023

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