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A myMPNteam Member asked a question 💭
Cairo, GA

How frequently do you do follow up blood tests? And what tests do you usually do?
I have ET (CALR Type1) and i do CBC every month. Only 9 months into diagnosis.
I am already on 1.5 mg of Anagrelide and my platelets have already stabilised

July 30, 2023 (edited)
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Answer Summary

Members shared that blood test frequency varies widely based on how stable their counts are and where they are in treatment, with most... Read more

Members shared that blood test frequency varies widely based on how stable their counts are and where they are in treatment, with most starting monthly until numbers stabilize, then moving to every three or six months once a baseline is established. Several members described the standard tests their doctors order, including CBC, complete metabolic panel, LDH, liver profile, and occasionally iron levels, with testing becoming more frequent again when starting or adjusting cytoreductive medications. A recurring theme was that close monitoring helps doctors confirm medications are working and provides peace of mind, though some members wished for more frequent face-to-face appointments alongside their regular labs.

A myMPNteam Member

I started at every 3-4 months after initial diagnosis. I’ve since been moved to every 6 months since blood counts have been stable.

July 30, 2023
A myMPNteam Member

I depends on where you are in treatment. Initially, once per month would be reasonable until your baseline is clearly established. If you remain asymptomatic, at some point the CBCs will be less frequent. Your doc will also likely periodically do a CMP, check iron levels, and perhaps a few other things like an iron panel, LDH, Prothrombin Times, etc. I would expect that at some point you would be doing CBCs every third month.

Note this would change if you initiate cytoreductive medications. Then you would likely do CBCs about every two weeks until you reach stability. CMPs would also be done more often.

July 30, 2023
A myMPNteam Member

I have always been 6monthly once diagnosed. 7 years now. I am same as you. CALR type 1.
The usual tests are:
CBC
Us & Es
Liver profile
LDH
I think that's all.

July 30, 2023
A myMPNteam Member

I do labs monthly. My oncologist has placed me on “cruise control,” meaning my numbers (373) are so good I only see him every four months now💕

July 30, 2023
A myMPNteam Member

Yep, depends on whether your labs are stable, or not.

I went thru months last year of first weekly and then every two weeks, with three phlebotomies in there.

Things settled down, and I have been on monthly labs the last 8 months or so.

The labs are how our docs know our meds are working, I remind myself. ☺️

August 8, 2024

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