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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Here Stopped Hydrea Due To Its Side Effects And NOT Have Their Platelets Rebound/increase?

A myMPNteam Member asked a question 💭
Galway, IE

I was having problems with ulcers on my tongue and blisters on my gums from Hydrea. My platelets at the time were 297. The Hydrea was stopped by my doctor 5 1/2 months ago. No other platelet lowering medication was ordered. I am still taking my daily Aspirin. My platelet counts since then have only been 305 then 330. I thought they would have rebounded after stopping Hydrea. My concern is that maybe my marrow is becoming more fibrotic.

August 4, 2023
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A myMPNteam Member

Have a bone marrow test and consider Interferon.

August 5, 2023
A myMPNteam Member

Do everything you can, to get on Pegasus Interferon; it may actually cure you.

August 6, 2023
A myMPNteam Member

That is my plan to ask for one. I live in Ireland and the healthcare system here is not the greatest! Tough to get what you need unfortunately.

August 6, 2023

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