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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who's Taking Or Took Jakafi? My Doctor Told Me He Can't Take Me Out Off.

A myMPNteam Member asked a question 💭
Converse, TX

Six months of Jakafi. Spleen only reduced 2cm. I want to stop taking it.

September 20, 2023
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A myMPNteam Member

I’m Taking. But I’m taking it to off labeled to help with my symptoms of extreme exhaustion, bone/joint pain, etc. It’s helping with that

September 20, 2023
A myMPNteam Member

Your doctor can wean you off the drug but I have found it very beneficial for the past 2 years. The largest dosage that is tolerable is best to help with spleen shrinkage.

September 23, 2023
A myMPNteam Member

taking jakafi since 2015

September 21, 2023
A myMPNteam Member

Richardg... I want to stop it because it appears it would be a long time before my spleen gets to normal. I'm concerned about my kidneys and liver if i take it a long period.

September 20, 2023
A myMPNteam Member

Thank u Rspriggle1 for your respond

September 23, 2023

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