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Is Anyone Having Trouble Access To Interferon?
I was not tolerating hydroxyurea after taking it for a few years. My MPN specialist is trying to switch me to Jakafi, but we are having a hard time keeping RBCs up while getting platelets down. I am still using low doses of HU to keep platelets down, but that tack is also pushing me towards anemia
We have talked about trying interferon, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on… read more
I have a sneaky feeling my doctor wants me to go on interferon and I see him tomorrow so I'll get an answer from him. (in Arizona). I started on hydroxyurea about 8 years ago then went to jackify then went to hydroxyurea with jackify now I'm just on jackify and I think they're adding the interferon but I don't know.
Go on YouTube and type in mpn webinars with the disease or question you have and you can find a lot of information.
Hi Shawn....I'm in Oregon and started besremi two months ago, I haven't had any issues getting it, my doctor has be going through biologic pharmacy, they've been wonderful!
Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?
I'm Currently Leaning Towards Interferon Vs The Other Two Options Given (jakafi And Hydroxyurea). Thoughts Anyone?
Saw A New Hematologist That Says He Has A Lot Of Experience With ET And MPNs. He’s President Of The Group Of Hematology/Oncology Locations.
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