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I'm quite concerned for my wife. She has had PV for over 11 years now (on Jakafi for about 10 years), and all of a sudden this April, things started progressing into MF. Her symptoms are drastically getting worse, but our first visit with our new oncologist (at Fred Hutch in Seattle), said that she may fit in the 2nd level/stage, moderate risk
I am just not sure if this is normal for the cancer to transition so quickly
She just finished a 2nd bone marry biopsy this past week, so we are… read more
Having recently been diagnosed with PV after 22+ years with ET, I believe looking back that I have been progressing toward that diagnosis for several years.
That may also be the case with your wife, but the best people to answer that question are your wife’s medical providers.
That doesn’t lessen worry, but I have found being fully informed is helpful to me in managing my illness and my stress level.
I feel strongly that we should get copies of all test results, go over them ourselves, and ask questions about anything we don’t understand.
Hugs to you both, and sending you strength.
Hi, there. I was diagnosed with ET in 2008 and began transitioning to MF around 2016. But I wasn’t officially diagnosed with MF until 2019 when I changed to an mpn specialist.
hi ChrisWeger , diagnosed in 1995 with pv , in 2015 progression to MF , now on jakafi and hydrea
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