I was told yesterday it might have changed to One of the other mpns. Not sure yet which one. I haven’t had any night sweats recently.

my wife currently is going through transition from PV to MF.. she noticed in April some changes in her arms, she said it felt like carpal tunnel.. then it just gets worse after that. she felt pulling inside her bones in her arms and legs, now she just gets severe bone pain. She also has the hot flashes especially at night, she says its like breaking a fever..
I think you will know with your body changing that you havent noticed before. Trust your gut and talk more to your doctor about what your feeling.

I’ve recently started the night sweats and hot flashes. My body feels like it’s shaking been like that for many months now with the shaking. I had blood work done the other day to make sure it hadn’t gotten worse or something was wrong. I’ve never had them before this year. When I asked one of my cancer doctors how will I know if and when it changes they said oh you will know. I’m not sure if it meant physically I would know or what. September 11th will be 11 years for me I turned 40 in March this year. I’ve seen where sometimes it can change after 10 years.

For some folks, progression to MF is marked by falling HCT and platelets (not attributed to medication), increased white cells/blasts, spleen enlargement, fatigue, bone pain, and/or night sweats. However, some people have similar symptoms with PV and do not have MF, and other folks with MF have few or no symptoms! A bone marrow biopsy can help with the diagnosis. This disease is very complex and each journey is different. Crazy.

Metsfan, I should have been more descriptive. It’s the Leukemia and Lymphoma Society website.