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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

ET And Fatigue For Several Days Each Month

A myMPNteam Member asked a question 💭
Rome, Italy

Hello All!I am 44, with TE, platelets count around 750K, on baby aspirin. I have been experiencing great exhaustion and tiredness over the past 5 months, but only for 4-5 days in a row each month. I was wondering whether anyone else with ET has similar symptoms or I should look into hormones or other causes. Any tip on how to deal with fatigue is very welcome! Thank you!

October 25, 2023
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A myMPNteam Member

Makes me very happy that I said something that helps you. Another thing that helps me, which you likely already know, is coffee. I limit it at two or three cups a day and stop after 3 p.m. That first cup in the morning, which I happen to be drinking right now, is something I cherish.

October 31, 2023 (edited)
A myMPNteam Member

Coffee is my go to vice much like chocolate as I abstain from alcohol, drugs, and gambling

December 16, 2023
A myMPNteam Member

Thank you, Janice! I thought Vitamins B are a bit controversial in connection with MPNs but B12 helps indeed with fatigue! Will make sure to discuss this with my hematologist at my upcoming appointment!

October 30, 2023
A myMPNteam Member

I've learned from this website that symptoms can vary greatly. I'm relatively lucky re energy level as long as I sleep OK, which is sometimes challenging. My tip for energy: 2000 mg of Vitamin B12. It's on the meds/supplement list I show my doctors and they haven't nixed it.

October 30, 2023
A myMPNteam Member

Classic ET. I had to retire.

October 25, 2023

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