MPN Reflex Panel Is Negative But Still I Have PV | myMPNteam

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MPN Reflex Panel Is Negative But Still I Have PV
A myMPNteam Member asked a question 💭

My doctor said my MPN reflex panel is negative for any mutations, but he still said I have Polycythaemia Vera. Can anyone please explain? As of now, my hemoglobin and haematocrit are not out of range. Can anyone please explain what is going on?

posted November 10
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A myMPNteam Member

I was only given the full diagnosis for PV after the test for the JAK2 mutation came back positive. So I can't answer your question because it sounds strange to me from what all I have read and learned since my diagnosis in September 2023. Five phlebotomies brought my numbers all in range but I still have PV and those numbers could go up again as my body decides to keep making more red blood cells.

posted November 10

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