My doctor said my MPN reflex panel is negative for any mutations, but he still said I have Polycythaemia Vera. Can anyone please explain? As of now, my hemoglobin and haematocrit are not out of range. Can anyone please explain what is going on?
I was only given the full diagnosis for PV after the test for the JAK2 mutation came back positive. So I can't answer your question because it sounds strange to me from what all I have read and learned since my diagnosis in September 2023. Five phlebotomies brought my numbers all in range but I still have PV and those numbers could go up again as my body decides to keep making more red blood cells.