Does Anyone See A Cardiologist For The Increased Risk Of Stroke And Heart Attack And Stroke In ET? Would That Be A Good Idea? | myMPNteam

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Does Anyone See A Cardiologist For The Increased Risk Of Stroke And Heart Attack And Stroke In ET? Would That Be A Good Idea?
A myMPNteam Member asked a question 💭
posted February 10
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A myMPNteam Member

Hello Patty2,
My PC Dr. set up appoints/referrals for Lungs and Heart test. But I am 60 y.o. I had Cat scans/MRI's during first treatment, all's good. Peace of mind to know have or had blood clots. Not right to be abused. I hate when Dr. ignore our instinct. Hope all goes well.🙂

posted February 10
A myMPNteam Member

I consult with a cardiologist due to having a co-occurring arrhythmia. Anyone who has any sort of co-occurring cardiovascular issue should definitely consult with a cardiologist. We are at increased risk.This care needs to be collaborative. MPNs are rare disorders and many doctors are not familiar with them. It can be a challenge to get all members of your care team to collaborate. We must be willing to be our own case managers and actively work to ensure collaborative care.

posted February 10
A myMPNteam Member

Hello again, dear Fellow Sufferers. I've been taking the time to read many posts here today but need to get to the piano to practice as I've been scheduling more piano performances for senior citizens. I feel happy when I do this, even though I can't play at the level of the performances easy to hear on Youtube, such as Artur Rubinstein playing Chopin Nocturnes. I just want to add, regarding cholesterol: I keep mine controlled with a low dose of Crestor, a statin prescribed by my internist. I had to try several, years ago, before I found one that didn't give me side effects. If reducing cholesterol helps with ET, so much the better. I realize that some people only want to use natural products, but I'm happy to use prescribed medications that have a lot of testing behind them, as long as they don't make me sick.

posted February 11
A myMPNteam Member

During the past two or three years I had been bothered by severe calf pain whenever I traveled by air or a long road trip. That was worrisome because of the risk of blood clots in MPNs. At least twice, I had to have venous ultrasounds after a trip to rule that out. I do have a cardiac arrhythmia known as a left bundle-branch block that needs no treatment. When diagnosed with that several years ago, I had a cardiac workup including an echocardiogram with treadmill testing. No other cardiac sequelae for me, but my oncologist did refer me back to a cardiologist last December. With a new echocardiogram and arterial ultrasounds showing no changes and no sign of circulation problems such as clots, I feel very much relieved that a cardiologist at least eliminated my fears. In my case, he provided peace of mind in what seemed like a chaotic year.

posted February 10 (edited)
A myMPNteam Member

Thank you Genette. I am so sorry you had to go through that, and that you are ok now. I am not seeing a specialist, just hematologist/oncologist at my local cancer center.

posted February 10

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