Hello I get the night sweats as well especially if I start thinking of something stressful. Mine usually come around 2 am. I do get occasional sharp pain in my legs. Try keeping the house cool at night. I also stop eating after 6 pm especially dairy or carbs. That has worked for me . Have a beautiful day 🙏

I have ET, CALR variant and Long Covid since 2020 - we all have different symptoms and treatments.

I turn the temp down a few degrees at night to lessen night sweats.
I wear summer pj’s year round, but sleep with socks bc my feet get cold. Poor circulation.
Some arthritic pains I haven’t had in years have returned.
Just keep treating symptoms and keep a list of ailments for your doc.

I hope this doesn’t come across as political, but our immune systems are weakened - my boosters, vax, RSV, pneumococcal, etc are up to date.
I’m in a large city and nobody has ever commented on my mask.
When I go to a restaurant I ask for a table on the perimeter - less people!

I do “chair yoga for cancer patients” and stretching exercises in bed.
My doc gave me scrip for PT for conditioning and balance, but I’m doing it at home.

I just learned my cancer center has a nutritionist so I’ll make an appt..

Good luck!

Yes, i would say so. Jakafi medication stopped my inflammation so i have no more night sweats. No longer bone pain either. We're all different but good to discuss this with your haemotologist or Doctor

Hi!

Bone pain is horrible, and it seems to be a staple in ET. My ET is considered inherited, and both my dad and his mom, who most likely had ET given how hight their thrombocytes were for decades, complained of severe bone pain throughout their life.

What seems to help me is to rest and pace myself as well as I can during the day. And also to avoid infections, as those make my symptoms thousands times worse for months on end. As Janet said, keeping up with avaliable vaccines and avoiding crowds can help with avoiding infections.
This is more about risk of infections and immunity issues in MPNs:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC77...
https://pubmed.ncbi.nlm.nih.gov/34618358/

Sweating for me comes after a day when I did not listen to my body and did a bit too much. My impression, given the pain and inflammation that follows, is that at least in those days sweating during the night is the result of the inflammation.

I hope you find a formula that keeps your symptoms as low as possible and that your doctors can help you access resources such as an occupational therapist and a physiotherapist specialised in chronic blood cancers. It makes a big difference in quality of life.

Many hugs of support,
Tatiana

Risk of infections in patients with myeloproliferative neoplasms – a population-based cohort study of 8 363 patients

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7738400/

The immune landscape in BCR-ABL negative myeloproliferative neoplasms: inflammation, infections and opportunities for immunotherapy - PubMed

https://pubmed.ncbi.nlm.nih.gov/34618358/

Thank you!!