Below the surface, living with myeloproliferative neoplasms (MPNs) can mean days spent in bed, missed appointments, and alternate days when you seem "fine." There's so much more to MPNs than meets the eye. MPNs come with hundreds of possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't see the many symptoms myMPNteam members experience.
On myMPNteam, the social network and online support group for people living with myeloproliferative neoplasms, thousands of members discuss the chronic nature of these diseases and their hidden symptoms. Throughout the year, we will share themes we see come up time and time again on myMPNteam. We chose the image of an iceberg to represent MPN symptoms because the life-impacting implications of an MPN diagnosis aren't obvious on the surface. Please share to spread MPN awareness!
This list is by no means exhaustive. What symptoms would you add?
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Fatigue. Sleeping again after a few hours awake and a good nights sleep. Joint pain. Phantom rashes and swelling.
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