Hi Renee I have my LDH each time I have a blood draw. Sitting at 480. Which is high but it is to do with tissue damage with cancer. I have ET

Hello Renee,
I'm not sure how common this test is for ET patients (like me), but my Stanford hematologist orders it every time I see him. As I understand it, LDH can help differentiate between essential thrombocythemia and myelofibrosis.

My original diagnosis was ET but my hematologist at the time never checked my LDH. When I suspected I had progressed to MF, I went to a mpn specialist and she tested my LDH. That was in 2019. My numbers were in the 400’s and she diagnosed me with MF intermediate 1. I am now intermediate 2/high risk and my LDH hovers between 1000 and 1200. I still don’t really understand what it all means. She doesn’t really address it.