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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Independence, MO
July 20, 2024
 · 
Reactions
A myMPNteam Member

Thank you for taking time to answer. Will have CBC in 2 wks so I'll see what's happening with my platelets.

August 17, 2024
A myMPNteam Member

I've been taking Jakafi for two years with no side effects other than a little weight gain. I take it for PV and it keeps all my blood counts under control (10mg 2x/day). Plus it stopped my itching which no other drug has done. I've taken hydroxyurea and interferon.

August 17, 2024
A myMPNteam Member

I’ve been taking Jakafi for about 2 years now with no noticeable side effects. My bone marrow was suddenly out of control and my oncologist switched me from long-term Hydrea to Jakafi with almost immediate results. Symptoms like shooting bone pain, head feeling weird etc. pretty much subsided. I still have good days and bad days and jyhad a bout with hip/back pain for 3 weeks. Better now. Hoping to prevent transition to Leukemia.

August 17, 2024
A myMPNteam Member

Thank you. I, too, haven't had any adverse side effects. I've been taking it about 5 wks. No ocular migraines so far

August 17, 2024

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