Hi LeeAnn, MT. Top, I am originally from Hazleton!! When I grew up there, it was a small town with wonderful people. I don’t even recognize it today, very sad. I was diagnosed with ET, CALR and TP 53 mutations in 2017. I have been taking hydroxyurea and low dose aspirin since then. I have not experienced any bone or muscle pain. I hope you feel better. Michele😊
May 8
Yes, bone and joint pain can be symptoms of MPNs, including ET. These types of pain are fairly common and can stem from a few different causes:
- Bone pain may result from overproduction of blood cells in the bone marrow, causing crowding and inflammation in the surrounding tissue
- Joint pain can occur due to a buildup of Show Full Answer
Yes, bone and joint pain can be symptoms of MPNs, including ET. These types of pain are fairly common and can stem from a few different causes:
- Bone pain may result from overproduction of blood cells in the bone marrow, causing crowding and inflammation in the surrounding tissue
- Joint pain can occur due to a buildup of uric acid, which can lead to painful swelling in the joints
- Thicker, stickier blood (known as hyperviscosity) associated with ET can also contribute to discomfort Hydroxyurea itself can also be a contributing factor. Known side effects of hydroxyurea include body aches and joint pain, so it's possible the medication is playing a role in what's being experienced.
It's really worth bringing this up with a doctor, as they can help figure out whether the pain is coming from ET itself, the treatment, or a combination of both. Never stop or adjust medication without speaking to a doctor first.
May 7