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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Out There With ET/Calr. Experience Lightheaded Feeling Daily?

A myMPNteam Member asked a question 💭
Plymouth Meeting, PA
October 12, 2024
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A myMPNteam Member

Thanks Veronica.

October 18, 2024
A myMPNteam Member

Thanks Carol. I have issues with my neck as well. I’m searching for an acupuncture practitioner in the area. I also started a full spectrum B complex. It seems to help.

November 24, 2024
A myMPNteam Member

Hi Jim, just following up. My new doctor put me on low dose aspirin in addition to Hydrea because I am symptomatic. Forgive me if I’m already telling you what you know, but aspirin has anti platelet properties and can help with micro vascular issues. My dizziness improved after starting it. I also asked my acupuncturist to work on my tight neck and that helped too. I can now drive more.

November 24, 2024
A myMPNteam Member

Thanks Carol. I don’t drive either.

October 28, 2024
A myMPNteam Member

I have intermittent dizziness which keeps me from driving. I am anemic though and think it may be causing it. Not sure. I have ET with Calr mutation like you. I went to MD Anderson to see their MPN specialists and I was not impressed.

October 27, 2024

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