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I'm susceptible to thinning hair to begin with, does it matter.

December 18, 2024
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A myMPNteam Member

Yes, I have a lot of hair loss on head, very depressing, being female, I've started using rosemary oil, every night, read up on it, and have started to see improvement, hope this helps, all the best, Antoinette

December 18, 2024
A myMPNteam Member

Joanne, I took my hydrea all at one time until I got to the four capsules a day and began having mouth ulcers. Dividing the dose between morning and evening stopped those.

Hydrea has been very effective for me, periodic dosage increases occurring when one count or the other got too high.

I had a few phlebotomies last year when I transformed to PV, which are the last resort, but ultimately the hydrea got everything stabilized and has remained that way. I haven’t needed a phlebotomy now in 13 months.

Until the mouth ulcers last year, I didn’t have any side effects.

The last few months I have been dealing with actinic keratosis on my face, from overexposure to the sun in my errant youth, brought to the surface by the high dose of Hydrea, I’m told.

Annoying, but I’m still alive and doing pretty well for 75 so I don’t let it get me down.

Hang in there.

December 18, 2024
A myMPNteam Member

No Ove been on it for nearly 30
Years and still
Have my thick hair

December 22, 2024
A myMPNteam Member

I have taken Hydroxyurea (500 mg) for five years with no hair loss.

December 18, 2024
A myMPNteam Member

Thanks, MH, for your prompt and helpful information regarding Hydrea usage. It is a comfort to me to know that you have been taking it for so long without complications, especially because there is a lot of talk about it being so toxic. I hope I do as well as you with the increased dosage and that maybe I don’t have to have phlebotomies every few months!
I am also dealing with some keratosis on my face recently and had a couple pre squamous lesions removed but going every six months to dermatologist should keep them in check I hope. Thanks again, MH!

December 18, 2024

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