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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Scotland uk
August 30, 2025
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A myMPNteam Member

Limit vitamin K......it's proven to increase platelet count!

August 31, 2025
A myMPNteam Member

People treated with HU should unusually supplement with folic acid (vitamin b-9). If I remember correctly, this info is included within the prescription instructions when the med is picked up. If applicable to anyone, talk with your doctor about supplementing.

August 31, 2025
A myMPNteam Member

The reason for taking a generic multivitamin would not be related to the ET. It would be to support general health. There is likely no downside providing the vitamin does not contain iron. If you are iron deficient and diagnosed with ET, your MPN care team would need to take a closer look at your diagnosis to rule out masked PV. There is no point to taking other vitamin supplements unless you have a diagnosed deficiency. This is something to have assessed by a medical professional if you have any concerns about your nutritional status. Having a complete nutritional analysis is a good idea for anyone, particularly as we age. More so when you have a MPN. We need to take good care of out bodies beyond the immediate MPN treatment priorities.

Suggest you touch base with a medical profession who is well-versed in nutrition. Note that this is not all doctors. Unfortunately, many doctors have limited training in nutrition. Integrative and Functional Medicine doctors have better knowledge in this area.

August 30, 2025
A myMPNteam Member

P.S. Of course, I meant...usually...

September 2, 2025
myMPNteam

Before starting any supplements, it's crucial to discuss them with your healthcare provider. While many people with MPNs take dietary supplements, they should never be used as a replacement for prescribed treatments.

Key points to remember
• Always get your doctor's approval before starting supplements
• Keep an Show Full Answer

Before starting any supplements, it's crucial to discuss them with your healthcare provider. While many people with MPNs take dietary supplements, they should never be used as a replacement for prescribed treatments.

Key points to remember:
• Always get your doctor's approval before starting supplements
• Keep an up-to-date list of all supplements you take
• Supplements are not regulated like medications
• Some supplements can interact with MPN treatments Certain vitamins require special consideration:

• Vitamin B12 and folic acid (B9) are involved in red blood cell production - levels should be monitored
• Vitamin C can increase iron absorption
• Vitamin D plays important roles in cell growth, inflammation and immune function

It's important to have your doctor monitor your vitamin levels and recommend appropriate supplementation based on your individual needs.

August 30, 2025

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