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October 3
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Supplements for Polycythemia Vera: 5 To Take and 3 To Avoid Read Article...
A myMPNteam Member

I've mentioned this here before. For reduced energy, it helps me to take 2,000 mg daily of Vitamin B12. I asked both my ET specialist and primary physician about this. They both said that amount of B12 is OK because this supplement does not build up inside the body. Always do check with your own doctor, of course.

October 4
myMPNteam

Great question! Managing ET can feel overwhelming, and it's natural to wonder if supplements might help. While most of the research on supplements focuses on polycythemia vera (PV), much of the general guidance applies to all MPNs, including ET.

Here are some key things to keep in mind about supplements and ET:

- Always Show Full Answer

Great question! Managing ET can feel overwhelming, and it's natural to wonder if supplements might help. While most of the research on supplements focuses on polycythemia vera (PV), much of the general guidance applies to all MPNs, including ET.

Here are some key things to keep in mind about supplements and ET:

- Always consult your doctor first — some supplements can interfere with ET medications like Agrylin or JAK2 inhibitors
- Natural doesn't always mean safe — some supplements can affect platelet levels or interact with treatments
- Avoid taking high doses of any supplement, as side effects become more likely
- Keep your doctor updated with a full list of everything you take, including over-the-counter products

Some supplements with anti-inflammatory properties have shown potential benefit for MPN patients dealing with symptoms like fatigue, itching, and joint pain — but there are currently no clinical trials specifically focused on ET and supplements. The bottom line is that your hematologist is the best person to guide supplement choices based on your specific treatment plan and health history. It's worth bringing up at your next appointment!

October 3

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