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A myMPNteam Member asked a question 💭
Roswell, NM
February 17
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What is the life expectancy for people with polycythemia vera?

People with polycythemia vera who receive appropriate treatment typically have a median survival of 10 to 20 years. This outlook depends on individual risk factors and how advanced the disease is at diagnosis.

The key to a better prognosis is preventing serious Show Full Answer

What is the life expectancy for people with polycythemia vera?

People with polycythemia vera who receive appropriate treatment typically have a median survival of 10 to 20 years. This outlook depends on individual risk factors and how advanced the disease is at diagnosis.

The key to a better prognosis is preventing serious complications like blood clots and bleeding through proper treatment. Most people with PV are managed with a combination of:

- Phlebotomy (blood removal)
- Baby aspirin
- Medications like Hydrea (Hydroxyurea), Pegasys (Peginterferon alpha-2a), or Jakafi (Ruxolitinib)

It's important to know that PV can progress to more serious conditions in some cases. About 15 percent of people develop myelofibrosis, and approximately 5 percent may progress to acute myeloid leukemia.

Regular monitoring with your hematologist and staying on top of treatment can help manage symptoms, reduce risks, and maintain quality of life for many years.

February 17
A myMPNteam Member

Wow your mom lived a long life after dx. She sounds like she had a great team of Drs and family support. ❤️

October 3
A myMPNteam Member

Mom diagnosed, age 69 in 1999. Was on generic HU x 10 yrs, before it stopped working. On Peg injections x 52 wks, felt horrible, severe fatigue & flu-like symptoms. Changed Oncologist, who put her back on HU (Brand Name only) x 7 yrs, then switched to Jakafi.

Age 89, diagnosed with CML, added Gleevec. Passed away just shy of her 96th Birthday, not from either disease. 🙏

A Retired RN, my PV Dx came 2 months after Mom’s death. Was told it is NOT hereditary because my genetic testing showed “somatic mutations” of the JAK2 gene – changes that occur in certain cells during a person's lifetime & are not inherited in PV & ET.

October 1 (edited)

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