What is the life expectancy for people with polycythemia vera?
People with polycythemia vera who receive appropriate treatment typically have a median survival of 10 to 20 years. This outlook depends on individual risk factors and how advanced the disease is at diagnosis.
The key to a better prognosis is preventing serious Show Full Answer
Wow your mom lived a long life after dx. She sounds like she had a great team of Drs and family support. ❤️
Mom diagnosed, age 69 in 1999. Was on generic HU x 10 yrs, before it stopped working. On Peg injections x 52 wks, felt horrible, severe fatigue & flu-like symptoms. Changed Oncologist, who put her back on HU (Brand Name only) x 7 yrs, then switched to Jakafi.
Age 89, diagnosed with CML, added Gleevec. Passed away just shy of her 96th Birthday, not from either disease. 🙏
A Retired RN, my PV Dx came 2 months after Mom’s death. Was told it is NOT hereditary because my genetic testing showed “somatic mutations” of the JAK2 gene – changes that occur in certain cells during a person's lifetime & are not inherited in PV & ET.