I haven’t lost weight with ET. I’ve kept my weight as I changed to eating healthier with less carbs. Let us know if you find out why you’re losing weight 💕
February 18
Has unexplained weight loss been happening with your essential thrombocythemia?
Unexplained weight loss isn't typically a common symptom of ET itself. However, it can be a sign if ET is progressing to primary myelofibrosis (PMF), which happens in some cases. When this occurs, the body uses lots of energy to fuel Show Full Answer
Has unexplained weight loss been happening with your essential thrombocythemia?
Unexplained weight loss isn't typically a common symptom of ET itself. However, it can be a sign if ET is progressing to primary myelofibrosis (PMF), which happens in some cases. When this occurs, the body uses lots of energy to fuel inflammation and cancer cell growth, leading to weight loss without trying.
A myMPNteam member shared experiencing significant weight changes with their condition, though this type of progression isn't common with ET alone.
Since you've already had CT scans and extensive blood work, it's important to discuss these results with your hematologist. They may want to:
- Check if there are signs of disease progression
- Rule out other reversible causes of weight loss
- Evaluate your bone marrow if needed
- Assess for any inflammation markers
Weight loss of 30 pounds is significant and deserves thorough investigation with your care team, especially to understand if your ET is changing or if there's another contributing factor that needs attention.
February 18
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