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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 23
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A myMPNteam Member

hydre affects everything. Kills platelets and red blood cells togeather.

February 24
A myMPNteam Member

I take it everyday could they lower it three times a week ect.

February 24
A myMPNteam Member

My rbc’s and wbc’s have been clinically low for months, my hematologist speaking to this when asked and not concerned because other indicators of problems are not there.

My experience with HU over 25 years is that it is increased when critical levels get too high, when they go back down the levels are monitored but generally dosage is left alone. As one of the NP’s pointed out to me, the HU is doing what it is supposed to do, and why break something that is working. ☺️

And, if they decreased your dosage that would likely increase your monitoring (labs) and you could be on a roller coaster of increases, decreases, frequent labs, etc.

It is important to have a physician you trust, to ask questions about anything you don’t understand and talk with them about any concerns.

All the best to you.

February 25
A myMPNteam Member

You need to reduce your Hu dose

February 24
myMPNteam

How can you manage low red blood cell count and hemoglobin while on Hydrea and aspirin?

It sounds like your treatment is working well for your platelets, but you're experiencing some side effects. Low red blood cell counts and hemoglobin are common side effects of hydroxyurea (Hydrea). This medication can cause your blood Show Full Answer

How can you manage low red blood cell count and hemoglobin while on Hydrea and aspirin?

It sounds like your treatment is working well for your platelets, but you're experiencing some side effects. Low red blood cell counts and hemoglobin are common side effects of hydroxyurea (Hydrea). This medication can cause your blood cell levels to drop too far, which may lead to anemia-related symptoms like fatigue.

Here's what you should know:

Your doctor will likely want to monitor your blood counts more closely. Depending on how low your levels are, they may:
- Adjust your Hydrea dosage
- Add iron or vitamin B12 supplementation if you're deficient
- Consider switching to a different medication if the side effects are significantly affecting your quality of life

It's important to stay in regular contact with your treatment team. You may need blood work every three to four months, or more frequently if you're having problems with your blood counts.

If your symptoms are making it difficult to function, don't hesitate to discuss this with your doctor. A myMPNteam member shared that when their numbers weren't improving and quality of life was suffering, their doctor consulted with an MPN specialist and adjusted their treatment plan.

Your healthcare team can help find the right balance between controlling your platelets and maintaining healthy red blood cell levels.

February 23

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