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Why do I hurt so bad I have MPN/mds

A myMPNteam Member asked a question 💭
Hamilton, OH
April 13
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A myMPNteam Member

I have been suffering back and hip pain for months now and my GP has prescribed me morphine patches (which help a little) but get very tired and cannot walk for vey long. I spoke to my haematologist about it and her answer was "polycythemia Vera does not cause this type of pain"??

So what type of pain does it cause!!

I am taking Jakvi for about a year now. I have been seeing the muscular skeletal team for a few months but I find it too painful to do the exercises.

Don't know what to next

April 14
myMPNteam

Why does MPN/MDS cause so much pain?

Pain is one of the most common symptoms of myeloproliferative neoplasms, affecting more than half of people living with MPNs. The pain can show up in different ways depending on your specific condition.

Here are the main types of pain you might experience:

* Bone pain - Caused by Show Full Answer

Why does MPN/MDS cause so much pain?

Pain is one of the most common symptoms of myeloproliferative neoplasms, affecting more than half of people living with MPNs. The pain can show up in different ways depending on your specific condition.

Here are the main types of pain you might experience:

* Bone pain - Caused by overproduction of blood cells crowding your bone marrow and inflammation in the tissue surrounding your bones. This affects about 48.5% of people with MPNs.

* Joint pain - Can result from a buildup of uric acid, sometimes leading to gout. This is especially common in myelofibrosis and polycythemia vera.

* Abdominal pain - Usually caused by an enlarged spleen (splenomegaly), which happens when your spleen takes over blood cell production or filters abnormal cells. Up to 90% of people with myelofibrosis have an enlarged spleen at diagnosis.

* Headaches - May result from thickened blood (hyperviscosity syndrome) that slows blood flow to your central nervous system, or as a side effect of treatments.

Unfortunately, pain is often overlooked in MPN treatment. Studies show that fewer than 44% of people with MPNs discuss their pain with their healthcare providers, and over 42% are dissatisfied with their current pain management.

It's really important to talk with your doctor about the pain you're experiencing so they can help you find better ways to manage it.

April 13

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Clitheroe, UK
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