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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If I am currently seeing a hematologist/oncologist because there are no MPN specialist in my state, is that ok? Or better to see MPN special

A myMPNteam Member asked a question 💭
Oklahoma City, OK
May 18
 · 
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A myMPNteam Member

I was going to a hematologist who seemed fairly knowledgeable of MPN. However, when I switched to an MPN specialist, I definitely noticed a difference. Therefore, I would recommend at least having a consultation/second opinion with one if possible (even by Zoom).

May 19
A myMPNteam Member

I see a haematologist and she does not specialize in MPNs but she has a number of patients with MPNs and I know she seems knowledgeable. She works with me and listens to my goals for treatment.

However , I think the more important question for you is, do you trust the hematologist that you see? Does the information they give you seem up to date? Do they answer questions or rush you out the door? Do they work with you to determine your treatment plan?

Would a hematologist who specializes in MPNs be helpful? Possibly. Some people think you must have one or at least have a consultation with one. I think that is a decision to consider if you feel they have more to give you treatment wise. And will your current hematologist accept the treatment plan they recommend if it’s different from the treatment plan your current doctor has you on?

May 18
myMPNteam

Both can play an important role in managing ET, and ideally, working with both is the best approach. Seeing an MPN specialist at least once — especially early in your diagnosis — is strongly recommended, even if your ongoing care is handled by a local hematologist-oncologist. Here's why seeing an MPN specialist adds value:

Show Full Answer

Both can play an important role in managing ET, and ideally, working with both is the best approach. Seeing an MPN specialist at least once — especially early in your diagnosis — is strongly recommended, even if your ongoing care is handled by a local hematologist-oncologist. Here's why seeing an MPN specialist adds value:

- They can confirm your diagnosis and make sure it's accurate
- They stay more up-to-date on MPN research and clinical trials than general oncologists
- They can assess your specific risk factors and recommend a tailored treatment plan
- They can communicate with your local doctor to coordinate care

As one myMPNteam member shared, their MPN specialist monitored their diagnosis more closely and gave them more thorough conversations about treatment options compared to their hematologist-oncologist alone. The good news is that you don't have to choose one over the other. Many people see an MPN specialist for consultations or annual check-ins, while their local hematologist-oncologist handles day-to-day care. Telehealth appointments can also make it easier to stay connected with an MPN specialist if one isn't nearby.

May 18

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