I was going to a hematologist who seemed fairly knowledgeable of MPN. However, when I switched to an MPN specialist, I definitely noticed a difference. Therefore, I would recommend at least having a consultation/second opinion with one if possible (even by Zoom).

Oi agree with needing a specialist. Not all hem/oncologist will work with a specialist. I find it worth the peace of mind to stick with the specialist. He is two hours from me but I can do video visits. After my second hem/oncologist insist that 50 to 55 (not a typo) for a hematocrit for PV is acceptable "according to the :books" so at 49 I did not need treatment and only refers to my platelet levels when I knew I had to make the switch. I was also comforting and helpful to see how providers are scored on Medifind. You can research any provider. I searched by diagnosis and found my specialist is overall rated distinguished and in regards to MPNs elite. Just from my own research through various sites on my dx I was knowledgeable enough to question the 50 to 55 hematocrit level. Thankfully. Important to self educate.

I see a haematologist and she does not specialize in MPNs but she has a number of patients with MPNs and I know she seems knowledgeable. She works with me and listens to my goals for treatment.

However , I think the more important question for you is, do you trust the hematologist that you see? Does the information they give you seem up to date? Do they answer questions or rush you out the door? Do they work with you to determine your treatment plan?

Would a hematologist who specializes in MPNs be helpful? Possibly. Some people think you must have one or at least have a consultation with one. I think that is a decision to consider if you feel they have more to give you treatment wise. And will your current hematologist accept the treatment plan they recommend if it’s different from the treatment plan your current doctor has you on?