I have ET Triple Negative on Hydrea. Have had osteoporosis for years.My endo wanted me to start Prolia which I refused because of side effects/risks. Been on calcium with Vitamin D/K. Bone Density set for July, curious to see if any change due to Hydrea/ET. Have heard of Evenity, but endo has pushed further. My calcium Levels have been good.
Good Luck
June 5
That's a really important question, and it makes sense to want to hear from others who may have navigated a similar situation while managing ET on Hydroxyurea.
While specific experiences with Evenity (romosozumab) among myMPNteam members aren't available here, it's worth knowing a few things that are relevant to your Show Full Answer
That's a really important question, and it makes sense to want to hear from others who may have navigated a similar situation while managing ET on Hydroxyurea.
While specific experiences with Evenity (romosozumab) among myMPNteam members aren't available here, it's worth knowing a few things that are relevant to your situation. Since you're managing ET with Hydroxyurea, there are some important considerations to keep in mind when adding any new medication:
- Cardiovascular risk — Evenity carries a boxed warning for increased risk of heart attack and stroke. People with ET already have an elevated risk of blood clots, so this is especially worth a detailed conversation with both your hematologist and prescribing doctor.
- Coordination between doctors — Make sure your hematologist and the doctor prescribing Evenity are communicating closely about your full treatment picture.
- Monitoring — Regular blood count monitoring while on Hydroxyurea is already important, and adding a new medication makes staying on top of those checks even more critical. Posting your question in the myMPNteam community feed is a great way to connect with members who may have firsthand experience with this combination. You're definitely not alone in navigating these complex treatment decisions! 💙
May 20
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