Wow Cheryl, the start of my journey was 1 of 2 clots, one to the right side of the brain which is now devoid of an artery. All the blood to my brain goes up the left side which is the side I experience heart beat tinnitus. I have never connected the two and neither has my doctor, but its logical when you think about it, thankyou.

SusanEmeile here’s how MPNs may be linked to tinnitus:

Thickened blood – Too many red blood cells or platelets can slow blood flow, causing unusual sounds in the ears
Headaches and neurological symptoms – Nearly 50% of MPN patients get headaches, and tinnitus can come along with that
Poor circulation – Abnormal blood cells may not carry oxygen well, affecting the tiny vessels in your ears
High blood pressure – A common MPN comorbidity that can also cause tinnitus
Since you're on baby aspirin, that's actually helping by thinning your blood a bit — which is good for circulation!

My Hematologist told me it's from hearing the thick blood moving past my ears. Our blood is sluggish and we hear it. So strange... May not be this reason for everyone, but for some of us anyway ....

Have had tinnitus and headaches for a long time so not sure I can definitively say it due to my ET or not. Would be interesting to know for sure.