Answer Summary
Members rallied around someone feeling overwhelmed about starting Hydroxyurea (HU), sharing a wide range of personal experiences that were... Read more
I have been on it for 8 months. It definitely got my platelets in a good range. I gained a couple pounds but thankfully that’s been the only side effects so far.
i take 2 times 500mg since 2015 , those skin effects are extremely rare !
I’ve been taking it for 1 and half years. I started off with 1 capsule a day (500) mg. I had very little side effects. I did get nauseous when I first started taking them but it subsided. My labs started to all go high so dr put me on 2 capsules a day. I feel so much better and blood work is good. Hang in there I’m praying you get great results !!
I took HU for 15 years. Very lose dose and gradually increased to 500 mg 2 PD, I then swited to Jakafi, then Ojarar, then Jackafi 2 more times. I am now back on HU 500 every other day. Will see. Still my drug of choice, I had Kidney issues with Ojjara and Anemia with Jakafi. Also the Jakafi and Ojjaara, HPB and high Cholesterol.
I have been on HU for a year. I was very uncertain at first about starting the treatment as the prospect of chemotherapy and the drug side effects warning sheet were both scary. However after 7 months and some gradual adjustments to dosage my blood counts settled back into normal range. I now take 6000mg / week and my blood counts are stable. I do have some side effects - some fatigue, hair thinning, brittle nails but they are manageable and HU does seem to act relatively quickly and is simple to take even when travelling on holidays. You do need to take care in the sun and have regular dermatology checks.