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Members shared varied experiences around whether their doctors described ET/CALR and other MPNs as cancer, with some learning the diagnosis on... Read more
Changing the classification to a cancer has provided more funding for treatment research
Yes, Hematologist called it blood cancer on day 1. It was shocking to hear but now, after learning all that I know about it, I wouldn't trade it for any other cancer.
My hemo told me from the beginning, that it was a benign blood cancer. It is contained within the bone marrow. So far, so good.
it used to be considered a disorder but now classified as a cancer
They probably didn't refer to it as cancer because of the distress it would cause when it isn't really a cancer.
Technically it is a cancer, but not in the traditional sense. It doesn't form masses or invade other parts of your body then finish you off, so its a little unfair to call it cancer.
I think your clinicians did the right thing, they only want the best outcomes and telling us we have cancer when we only 'sort of' do isn't useful or helpful.
Wishing you all the best.
Andrew.
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