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A myMPNteam Member asked a question 💭
London, UK
2 days ago
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A myMPNteam Member

I take Anagrelide for CalR ET. I woke up in the middle of the night with a leg cramp a couple of nights ago, which is unusual for me. Took a couple of Tylenol and was able to go back to sleep. I agree that this might be dehydration, as we're having unusually high temperatures here in Los Angeles.

1 day ago (edited)
A myMPNteam Member

I’m on Anagrelide and I get occasional cramps in arms and legs. Or could be due to dehydration. 🤷🏻‍♀️

2 days ago
A myMPNteam Member

This only started after about 4 weeks of taking the tablets
And some bruising on my arms too
Is it the tablets or the desease I wonder

2 days ago
A myMPNteam Member

I excercise three times a week, twice in the gym, 40mins each, once in the pool for 1000m.

I started on this about 12 months before they put me on hydroxycarbamide, it was suggested that it would help alleviate any symptoms.

Whether it's just me or the excercise, but I've not suffered any aches or pains, or any other symptoms at all, and all other general aches and pains that were age related have gone.

It's worth giving it a go.

2 days ago
myMPNteam

Yes, joint and body aches are a known side effect that some people experience with hydroxycarbamide (also called hydroxyurea). You're definitely not alone in noticing this.

A myMPNteam member shared that hydroxycarbamide "wreaked havoc" on how they felt overall, and many others have reported similar physical discomfort Show Full Answer

Yes, joint and body aches are a known side effect that some people experience with hydroxycarbamide (also called hydroxyurea). You're definitely not alone in noticing this.

A myMPNteam member shared that hydroxycarbamide "wreaked havoc" on how they felt overall, and many others have reported similar physical discomfort after starting the medication. There are some things that may help ease joint and body aches:

- Gentle massage on affected areas to soothe pain and improve range of motion
- Yoga to reduce joint stiffness and improve relaxation
- Tai Chi for gentle movement that can reduce joint pain and improve well-being
- Topical medications (sprays or patches) for joints closest to the skin surface

It's really important to speak with your doctor about what you're experiencing before making any changes to your medication. Never stop taking hydroxycarbamide without consulting them first.

2 days ago

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