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A myMPNteam Member asked a question 💭
Massapequa Park, NY
October 12
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Applying for Social Security Disability Insurance (SSDI) with an MPN can feel overwhelming, but breaking it down into steps makes it more manageable. Here's what the process generally looks like:

Step 1: Check Your Eligibility
- You typically cannot earn $1,260 or more per month
- You must be unable to perform basic job Show Full Answer

Applying for Social Security Disability Insurance (SSDI) with an MPN can feel overwhelming, but breaking it down into steps makes it more manageable. Here's what the process generally looks like:

Step 1: Check Your Eligibility
- You typically cannot earn $1,260 or more per month
- You must be unable to perform basic job tasks (standing, walking, lifting, sitting, remembering) for at least 12 months
- Myelofibrosis and MPNs requiring regular red blood cell transfusions are specifically listed under Hematological Disorders — ET and PV are not listed by name, but you may still qualify

Step 2: Gather Your Documents
- Personal info: legal name, date of birth, Social Security number, family details, bank account info
- Medical evidence: contact info for your oncologist/hematologist, full medication list, test results (blood counts, imaging)
- Employment history: earnings from the past year, employers from the past two years, full work history from the past 15 years
- Documents: birth certificate, Social Security card, proof of citizenship, W-2s, medical records

Step 3: Apply
- You can apply online if you're between 18–65, born in the U.S., never married, and haven't been denied in the past 60 days
- Otherwise, apply at a local Social Security office or by phone Step 4: Wait for a Decision
Processing typically takes 3 to 5 months — sometimes longer. Only about 21% of applicants are approved on the first attempt, so don't be discouraged if it takes more than one try.

Step 5: Appeal if Denied
- First appeal: reconsideration by a new reviewer (about 2% approval rate at this stage)
- Second appeal: hearing before an administrative law judge — you can bring a disability attorney, who usually takes a percentage of benefits rather than upfront fees
- Final option: Appeals Council review, or a federal court hearing

It's a process that requires patience, but many people with MPNs do successfully receive benefits. Consulting a disability attorney early can really help improve your chances.

October 12

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