I hear it in some PVs you should do done circulation type ex's or Lymphatic System Exercises. All on YouTube these days .
Cancer Rehab PT has good ones
October 21
Foot neuropathy (nerve pain or tingling in the feet) isn't one of the most commonly highlighted symptoms of polycythemia vera (PV), but it can be connected to the disease. PV causes the blood to thicken due to excess red blood cells, which slows blood flow and can reduce circulation to the extremities like the feet — Show Full Answer
Foot neuropathy (nerve pain or tingling in the feet) isn't one of the most commonly highlighted symptoms of polycythemia vera (PV), but it can be connected to the disease. PV causes the blood to thicken due to excess red blood cells, which slows blood flow and can reduce circulation to the extremities like the feet — potentially contributing to nerve-related symptoms.
Some myMPNteam members do report tingling, burning, or numbness in their feet, which may be linked to poor circulation or small blood vessel clotting associated with PV. Managing PV well is generally the first step in addressing circulation-related symptoms. Recommendations that may help include:
- Keeping hematocrit levels in check — through phlebotomy or medications to reduce blood thickness
- Low-dose aspirin — to help thin the blood and improve flow
- Staying physically active — movement keeps blood circulating and reduces clotting risk
- Medications — such as hydroxyurea, interferons, or JAK inhibitors like ruxolitinib (Jakafi) to control red blood cell production
- Avoiding smoking — which narrows blood vessels and worsens circulation
It's really important to bring foot neuropathy symptoms up with a hematologist or MPN specialist, as they can help determine whether it's circulation-related and adjust the treatment plan accordingly. Don't ignore it — it's worth the conversation!
October 18
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