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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Jakafi" in Q&A. To see all results and access other features, sign up for free.

What Is After Jakavi In Myelofibrosis???

A myMPNteam Member asked a question 💭
Delhi, CA
A myMPNteam Member

Adding more specifically to my prior post, if Jakafi stops working for you, there are other JAK inhibitors to try. Also, you seem relatively young and may be a good candidate for a transplant. If Jakaread more

I Have Gained 13 Lbs. Since Taking JAKAFI. I Am A Small Woman, And This Has Caused More Abdominal Pain. Has Anyone Else Gone Through This?

A myMPNteam Member asked a question 💭
Reading, MA
Pain and MPNs: Causes and Management Read Article...
A myMPNteam Member

I started on Jakafi about one year ago - mostly due to unbearable aquagenic pruritis and blood counts. It has helped tremendously for both, but I am now experiencing the side effects of weight gain… read more

What Are People Paying For Jakafi

A myMPNteam Member asked a question 💭
Marco Island, FL

I am on Medicare and Medicare Drug Plan, using AARP, I was just thinking about going to Jakafi and the price I am being quoted is around 2900.00 per month for 10Mg twice a day. Just curious what the real cost is. I can go to my Cancer Center and ask them to try for a better price, still won't know what the price should be.

A myMPNteam Member

I took Jakifi from April '22 until maybe November. I paid more like $4600 a month with insurance. Now I'm on Inrebic which is more like $6200 a month and I'm having to go look for assistance in order… read more

I Am Puzzled And Worried That My Haemoglobin And Platelets Keep Dropping Whilst I Am On Jakafi Medication.

A myMPNteam Member asked a question 💭
Richmond, NZ

I have been diagnosed in the last 5 months with Primary Myelofibrosis. Prior to that i have had thrombocytopenia.

A myMPNteam Member

One of the problems with Jakavi is it makes you anaemic To the stage you could become transfusion dependant Try and finds clinical trial in your area

So If One Was On A Med/meds For ET, Or Similar Issues, Besides Lowering Platelets Will It Also Fix Or Lessen Other Related Issues?

A myMPNteam Member asked a question 💭
Tx

Issues such as chronic migraines, headaches, fatigue, itchy skin, worsened vision, occasional burning feeling in feet, intermittently getting hot, brain fog, body inflammation, etc.

Would peg interferon help these? Jakifi? What others?

Trying to learn 🤷🏻‍♀️.

A myMPNteam Member

Steve, thanks for your input. Always valuable.

Anyone Taking Pegylated Interferon For An MPN And If So How Bad And How Long Did The Side Effects Last?

A myMPNteam Member asked a question 💭
Westminster, MD

I have PV and am JAK2 positive. I was diagnosed two years ago and have been taking 1500mg Hydrea/per day for almost a year. It has been keeping by blood work and symptoms under control. I am under 60 and have concerns about staying on Hydrea long term. I just had a telemedicine appointment with a doctor at Johns Hopkins who also expressed concern about the long term use of this medication, particularly for me since I am also BRAC2 positive. We discussed two other options such as Jakafi or… read more

A myMPNteam Member

I couldn't tolerate HU, and just switched to Pegasys after going to a Specialist out of state, and him finding me a better Oncologist locally. I had no big side effects from my first injection. A… read more

Is Anyone Currently On The Medication Combo Of Interferon (Pegasys) And Ruxolitinib (Jakafi)?

A myMPNteam Member asked a question 💭
Haines City, FL

I know many people are taking this combo. Is anyone on this forum? If so, how are you doing on it? What dose of IFN & RUX are you taking? How long have you been doing it? What is your diagnosis? I'm ET JAK2+ & will be discussing this combo with my MPN specialist at my next appointment but wanted to get input from those that are currently on it. TYIA!

A myMPNteam Member

45mcg is .25ml. use small diabetic needles. Right now I'm using .07ml which is 12.6 mcg. It's a tiny amount. So you might try .12ml which is 21.6 or .13ml which is 23.4 mcg.

Does Anyone Take Jakafi For Polycythemia Vera?

A myMPNteam Member asked a question 💭
Cameron, MO

I just started taking it a few months ago, I used to take Hydroxyrea

A myMPNteam Member

Besremi has been working for me.

People Taking Jakafi. Side Effects? How Long To Take Effect? Does It Keep Hematocrit Numbers Down To Prevent Having Phlebotomies?

A myMPNteam Member asked a question 💭
Windber, PA
A myMPNteam Member

It did for me but then my counts got to law and I became anemic. I was on the lowest dose.

My Husband Has Primary MF. Last Two Months Has Suffered Debilitating Pain, Weakness And Numbness In Right Thigh.

A myMPNteam Member asked a question 💭
Ridgeway, SC

My husband has primary MF. Last two months has suffered debilitating pain, weakness and numbness in right leg. Anyone else experiencing? He has seen orthopedic and MRI. Surgeon does not think his age related spinal changes the problem. thank you.

A myMPNteam Member

thank u, sure glad u saved your foot/leg. U are right about the oozing love dog. Ours keeps us going! Yours sure is cute! God bless! (Here is our oozer, Charley)