Kim, about your chronic cough, by any chance are you taking a blood pressure medicine in the group called ace inhibitors? In about 10% of patients, ace inhibitors cause a dry cough.
1 month now but I was started at 200 so my anemia has really improved. I changed to taking it at night as I was was really tired by noon after taking it in the morning. Not sure if it was the… read more
Any have similar results
Yes! I no longer have my Spleen “baby”, night sweats gone, becoming less transfusion dependent, much greater energy, my numbers are almost all in the “normal” range now, WBC was over 50 and now is… read more
Hi,63 , diagnosed with PV 10 years ago. Extreme exhaustion always. phlebs and aspirin only. Counts not too far out of range. Daily routine includes yoga and walking, nutritionsupplements. Trying to eat healthy always but no appetite.
Why so tired??
I was diagnosed with PV 9 months ago and am trying to get up to speed. Just discovered myMPNteam. I’m curious for those that have been dealing with this for longer, at what point is drug therapy recommended? My doctor said it was preferable to do phlebotymys to keep HCT below 45, 40 even better. But as I read some of the stories here I see many people on drug therapy. Appreciate any wisdom