anyone else with et notice uti issues and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "anyone else with et notice uti issues"

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Does Anyone Have Ringing In Their Ears Intermittently With PV?
A myMPNteam Member asked a question đź’­

Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?

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A myMPNteam Member

I am now on OJJAARA and the tinnitus has increased more, or it simply changes with the blood counts. My hearing aids have the ability to add a tinnitus masker but that was more annoying than the… read more

Has Anyone Experienced Bone/joint Pain? I Am Still Waiting On My Bone Marrow Biopsy Results But Was Diagnosed With ET + JAK2
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

I have hip pain... keeps me up at night. No clue if it's arthritis, bursitis, or just joint pain from ET. I'm going to see the osteo doc soon.

Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?
A myMPNteam Member asked a question đź’­

My Hema said I could do it in their office. I’ve heard it can cause iron deficiency, anemia, loss of nutrients.

But it’s gotta be less toxic than an Rx, right? Seems all options have pros and cons? Some better and worse than others.
Thought this could be a good place to start for if and when I’m told baby aspirin isn’t enough.

New to all this mess and just started baby aspirin Jan. 31 but don’t even want to be on that.
🤷🏻‍♀️

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A myMPNteam Member

Forgot to include the 20 year longevity study. The Anagrelide < HU study was separate from the phleb + aspirin < HU < interferon study.

Wondering If Abdominal Issues..stomach Aches And Often General Abdominal Discomfort Is Related To ET Or Just Another 80 Yr Old Body Issue?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Hi Pat. Causation is difficult. I have had a sensitive stomach for years, long before ET was diagnosed in 2022. I think it comes from being a high-performing but anxious person. For me, a nighttime… read more

I Was Diagnosed In 2013 With ET. Biopsy Confirmed The Jak 2 Mutation. Is This MPN Condition Classified As Cancer?
A myMPNteam Member asked a question đź’­
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Conditions Related to Myeloproliferative Neoplasms (MPNs) Read Article...
A myMPNteam Member

Thank you for the clarification. My Hematologist is not responding to my e-mails. I have to call her office tomorrow to follow up. I don’t understand why they can’t just respond. Usually they respond… read more

What Do People Do To Help With Itchy Skin?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Hello from Los Angeles. I've been dealing with Cal R mutation ET since 2020
I'll add: If it's a small itchy spot, it helps me to put on anti-itch cream or cortisone cream and cover the spot with a… read more

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more

How Many Of You Have A Close Relative With A Blood Cancer?
A myMPNteam Member asked a question đź’­

I have ET and my mom had Mylodysplastic. I’m thinking about my children’s future

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A myMPNteam Member

My mother’s brother died of leukemia and one of her sisters has leukemia. I think they both were CLL
Mum is one of 12 kids. My uncle died 15 years ago. My aunty said she had chemo treatment about 7… read more

Does Anyone Have Vaginal Dryness &amp; Itching &amp; What Do You Do For It Besides Hormones?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Does it have an odor

Does Anyone See A Cardiologist For The Increased Risk Of Stroke And Heart Attack And Stroke In ET? Would That Be A Good Idea?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

My new oncologist is sending me back to my cardiologist because he is worried about one of the prescriptions I take that is a calcium channel blocker. My PCP prescribed it. Oncologist wants it… read more