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Medication Question
I'm curious about people's use of various meds for PV, when they've transitioned to a different medication, and what they transitioned to. I'm currently on 1000 mg of Hydroxyurea and phlebotomies, am very iron deficient, and miserable (fatigue, nausea, headaches, itching, and night sweats).
Rest when you need too, no one likes fatigue but we are all human!😜
Double Hydrea Twice A Week, Extreme Fatigue After Heavy Workout At Gym On The Days I Do A Double. PV For Three Yrs Anyone Experience This???
At 73 I’ve been working out for 40 yrs and have a muscular build. Recently, after starting 9 hydrea 500mg per week, I find myself extremely fatigued if I workout hard then take second hyrea that night. Next day is a wipeout.
Experimented with light session and it seems to reduce the fatigue.
Is there any research on the effects of exercise and PV with hydrea? Anyone else in the same boat?
Wow!!! That’s great news from you. Terrific info, we are similar and I have adapted a bit better now with easier workouts. Best wishes Peter
Diagnosed With ET Taking 1000 Mg Four Times A Week And 1500 Mg Three Times A Week. Is There Another Solution For Treatment.
May you have the best possible care for him and his complete remission.
My Husband Has Primary Polycythemia Vera (diagnosed In 2021). His Fatigue Has Been Increasing...........
Is there anyone else with PPV that has fatigue?
Sincerely,
Lisa
Have fatigue. Some days are better than others. Unfortunately seems a common symptom of MPNs.
HU Dosage Was Increased. Now I Am Iron Anemic And Fatigue Really Increased. I Have PV And Can't Take Iron. Any Ideas Anyone ?
Polycythemia: Memory Issues
Hi All,
I am a 62 y/o law student. Over the last nine months or so, ever since my polycythemia diagnosis, I have noticed trouble recognizing, remembering, and naming other law students on my campus. These are people I feel I should know. I wonder whether my blood-sludge is decreasing oxygen transport to my brain. I worry that this problem will get worse and affect my capacity for critical analytical thinking.
Online reading has not indicated polycythemia as a reason for such memory trouble… read more
Wellbutrin is prescribed for depression and smoking cessation, but it is also used off-label for ADD/ADHD. So I take a small amount to fight the brain fog. It is working! It also helps fight my… read more
Anything We Myleofibrosis Patients Can Take To Mitigate The Fatigue?
See a Functional Medicine practitioner. I highly recommend Pegasys Interferon.
Does Hydroxycarbamide Cause Fatigue
Yes… HU causes fatigue.
Is Jakafi Better Than Hydroxyurea For PV?
I take hydroxyurea 500mg daily and it's controlling my PV very well. But I am extremely fatigued - to the point of making it hard to even work. I am considering trying to get Jakafi and I am wondering if I will still have the fatigue due to having to keep my blood counts low. My Hgb is 13, Hct 37, RBCs 3.5, Mcv 109. Any advice? Is it the hydroxyurea making me so tired? Or is this life with PV?
Has Anyone Been Suggested To Try Low Dose Naltrexone To Help Manage ET ? .. My GP Who Is Very Integrative Has Suggested This.
Deb, I’ve just started LDN in a bid to reduce inflammation, pain and fatigue which may be post viral syndrome, symptoms of my MPN, or a combination of both (bit of column A, bit of column B).
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