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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Here Takes Vitamin D? How Much Is Your Dosage? Has It Helped You? Made Anything, Blood Counts Worse, Etc.? .

A myMPNteam Member asked a question 💭
Tx

I started on 1,000mg.
But this next refill is for 5,000mg.
Then wondering if 10,000mg like I read on here by a member who takes every other day would really help me.

Originally, my Chinese Med Dr suggested to do 10,000mg but I wanted to start low and get higher for fear of headaches, it not working right, etc.

February 22 (edited)
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A myMPNteam Member

I take Vit D supplements due to a measured Vit D deficiency, which is related to another condition, Neurofibromatosis Type 1. Long-term use of Nexium for GERD likely does not help. My dosing is based on measure response to the supplement. My current dose is 100mcg/4000IU qd. Note that Vit D is usually measure in either mcg or IU.

I also take Vit B and Magnesium supplements due to measured deficiencies with dose adjustment based on measured response. I am a strong believer in using objective measures whenever possible with any intervention we use.

February 22
A myMPNteam Member

I take vitamin D3 but not in connection with my ET condition. I use it because my internist recommends it for strong bones. I let the internist and hematologist know about any supplements I take, to avoid possible interactions with ET meds, but they usually lack info about supplements.

February 23
A myMPNteam Member

Taking Vit D supplements (for my Vitamin D deficiency) for me has had no effect on lowering platelets in blood tests.

February 22
A myMPNteam Member

Analytical Research Lab, in Phoenix, is a good way to test for supplement needs. I do the Hair Analysis…

February 22 (edited)
A myMPNteam Member

I was having palpitations and started taking vitamin D and they stopped.

February 22

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