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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Recently diagnosed with ET/CALR.

January 25
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A myMPNteam Member

Yes, I have that also.

January 26
myMPNteam

Are numbness symptoms common with essential thrombocythemia (ET)?

Yes, numbness and tingling are very common with ET. In fact, more than 61 percent of people with MPNs report experiencing numbness as a prominent symptom. These sensations, often described as "pins and needles," typically occur in the extremities like hands Show Full Answer

Are numbness symptoms common with essential thrombocythemia (ET)?

Yes, numbness and tingling are very common with ET. In fact, more than 61 percent of people with MPNs report experiencing numbness as a prominent symptom. These sensations, often described as "pins and needles," typically occur in the extremities like hands, feet, fingers, and toes.

Numbness is most frequently associated with ET specifically. This happens because of platelet and blood vessel interactions, and the development of blood clots in the small vessels of the hands and feet can contribute to these sensations.

What you're experiencing is a recognized symptom of ET, and you're not alone. A myMPNteam member shared similar experiences: "My extremities do feel weak at times. Typically my arms and hands."

The symptoms you're noticing when sitting, driving, or lying down may be related to how blood flow and platelet activity affect your nerves during these positions.

It's important to discuss these symptoms with your healthcare team. They can help determine if any adjustments to your treatment plan might help manage the numbness, and ensure nothing else is contributing to your symptoms.

January 25

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